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Eight years waiting for change
Young Epilepsy calls on the Prime Minister to protect access to cannabis-based medicines and improve NHS treatment for young people with severe epilepsy.
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Keep up with the latest news from Young Epilepsy and stay informed about stories, campaigns, and changes that could impact you and your family.
The Power of Research – Joint Research Reception
The Power of Research – Joint Research Reception
Mental Health Intervention in Childhood Epilepsy (MICE)
Evidence for a new psychological treatment for children with epilepsy has been published in The Lancet.
NICE Epilepsy Standard Adds Mental Wellbeing and Learning Impact
Young Epilepsy has welcomed a new quality standard for epilepsy care that say children and young people should be asked about their mental wellbeing and learning at their epilepsy appointments.
New valproate measures to begin in January 2024
The medicines regulator has asked healthcare organisations to plan for new measures related to the anti-seizure medication valproate. These changes will start to be rolled out from January 2024.
Epilepsy12 report on children’s epilepsy care
The latest figures from the Royal College of Paediatrics and Child Health (RCPCH) show that epilepsy care for children is improving, but access to services still varies greatly.
SUDEP Action and Young Epilepsy Launch Epilepsy Risk Checklist
SUDEP Action and Cornwall Partnership NHS Foundation Trust are collaborating with Young Epilepsy to create a paediatric version of the SUDEP and Seizure Safety Checklist. The award-winning Checklist, which launched in 2015, supports health professionals in discussing epilepsy mortality risks and SUDEP (Sudden Unexpected Death in Epilepsy) with their patients (aged 16+).
Public Statement from Coalition of Epilepsy Organisations
Young Epilepsy is joining with other organisations from the epilepsy community to call for a review of proposals that could have an impact on access to the anti-seizure medication valproate.
Many Women Unaware of Epilepsy Medication Risks in Pregnancy
Epilepsy Medications in Pregnancy Survey Report
NHS to offer new laser surgery for focal epilepsy
NHS to offer new laser surgery for focal epilepsy NHS England has announced it will offer a new type of laser treatment for children and adults with uncontrolled focal seizures.
Young Epilepsy Introduces OPM-MEG
National charity, Young Epilepsy is set to revolutionise the diagnostic experience for children with the condition by introducing the world’s first clinical wearable MEG (Magnetoencephalography) brain scanning system to its Health and Research Centre in Surrey. Following an exciting collaboration with experienced MEG researchers, clinicians and engineers from around the world, the team have created a wearable optically pumped magnetometer magnetoencephalography (OPM-MEG) system. The charity has placed this innovative technology, which is integrated into a magnetically shielded room, at the centre of its new diagnostic suite.