Young boy, smiling in hospital with electrodes stuck to his head for an EEG.

You can change what happens next

We’re developing a brand-new way to support families from the very moment a child or young person is diagnosed with epilepsy.

Donate Today!

Right now, another child is hearing the words “you have epilepsy.” It’s frightening. It’s overwhelming. And no family should face this moment alone.

Nearly every hour, another child or young person in the UK is diagnosed with epilepsy.

Too many young people and their parents tell us, “I wish we had known about Young Epilepsy sooner.” In those first days and months, families are left searching for answers in the dark - unsure, scared, and desperate for information they can trust.

This will be a ‘first of its kind’ approach that gives families immediate guidance, emotional reassurance, and practical tools, tailored to the child’s age; to help them through those terrifying early months - so no one has to navigate their diagnosis alone.

Get in touch today and speak to our partnerships team

And you can help bring this vision to life

Your support will put trusted information and essential tools directly into the hands of a family at the moment they need it most.