Epilepsy and Christmas: Facing your first festive season with a new diagnosis
Experiencing a new diagnosis of epilepsy during the Christmas holidays brings unique challenges. The festive season is often associated with joy and togetherness, but it can also amplify feelings of uncertainty and isolation. As one young person vividly recalls:
When I first got my current seizure in the Christmas season of 2014, I remember feeling just a sudden urge to drink something, and my heart was racing rapidly… the next thing I know, I wake up in hospital.
Not knowing what’s coming next or how your body might react can be frightening, especially amid the excitement and unpredictability of Christmas. For families, these emotions are shared:
Christmas can be magical, but when your child has epilepsy, it can also feel overwhelming. The lights, the noise, the change in routine… it’s a lot to manage. If you’re feeling anxious or unsure, you’re not alone.
Celebrating Christmas with epilepsy: Social gatherings and alcohol
Festive parties often raise questions about alcohol consumption for those living with epilepsy. Peer pressure can be difficult, but it’s important to make choices that feel right for you. As expressed by a community member:
I wish people would know that not all those living with epilepsy are allowed to drink alcohol, so don't try and peer pressure them. They would rather consult with their doctor first... before trying alcohol firsthand.
It’s absolutely fine to say ‘no’ to alcohol, late nights, or any activity that makes you anxious or uncomfortable.
First Christmas after epilepsy diagnosis: Coping with fatigue and emotions
For many, the first festive season after a diagnosis of epilepsy can be overshadowed by exhaustion and anxiety, particularly following a seizure:
I woke up from that seizure very tired and exhausted and emotional. It felt like, did that just happen or was I just dreaming?
But even during tough moments, support can make the difference. One young person shares the value of their network:
Regardless of the struggles I had, every festive season for me it was still like fun… I was very lucky to have a very good support network around me, great friends, great family, and especially great support from the counsellors at school.
Epilepsy support at Christmas: Tips from young people and families
You don’t have to face Christmas alone. The Young Epilepsy team offers encouragement and practical help:
Let’s get ready for Christmas together. We’re here with support, information, and a community that understands what you’re going through.
- No question is too small – reach out for tips or just to share how you’re feeling.
- Don’t feel pressure to join in with every activity if it makes you anxious or tired.
- It’s absolutely fine to say ‘no’ to alcohol, late nights, or anything else that doesn’t feel right.
- If you feel comfortable, share your story – your experience might help someone else.
Sharing your epilepsy experience at Christmas: Helping others feel less alone
One of the most empowering things you can do is share your journey. Your tips and lessons learned can bring hope and comfort to others:
Your story could be the lifeline someone else needs. Share your tips, your lessons learnt, and your hopes - and help another family feel less alone this Christmas.
This festive season, remember: support is always within reach. Whether you’re asking questions, seeking comfort, or simply sharing your experience, there’s a community ready to help you navigate epilepsy through Christmas and beyond.
Help a young person newly diagnosed with epilepsy this Christmas
