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children and young people have epilepsy in the UK, with 23 new cases diagnosed every day.
children and young people with epilepsy have seizures they can't control with medication.
children and young people say living with epilepsy greatly affects their mental health.
children and young people with epilepsy don't get the support to take part fully at school.
If you have epilepsy or you've recently been diagnosed, you might be feeling upset, angry, depressed or confused. Our health information, support options and real life experiences can help.
Whether you have a child who has been recently diagnosed or if you have a school-aged child with epilepsy, there are many challenges that parents and carers can face. Check out our health information and guidance for parents and carers.
Every single donation - no matter how big or small - helps us to support more children and young people with epilepsy.
By working with experts at Great Ormond Street Hospital, University College London and others, Young Epilepsy's research helps us learn more about epilepsy and find better ways to support young people and their families.
With the help of young people with epilepsy and their families, we've created a story book for children with epilepsy! Learn more about the process and get your FREE copy.
Watch our seizure films, created with young people with epilepsy, to learn about different types of seizures and what you can do to help.
"By understanding what to do when I am having a seizure, you’re helping to keep me safe."
Real stories, expert tips, and honest conversations that matter. Whether you live with epilepsy or support someone who does, this is your space to feel informed, empowered, and connected.
Help us push the boundaries to ensure the voices of children and young people with epilepsy are heard, their voices respected and their ambitions realised.
See our latest news and blogs
Manchester scientists have identified one of the most common genetic causes of severe childhood epilepsy, giving families long‑awaited diagnoses and opening the door to better understanding and future treatments.
New research shows epilepsy can have a serious impact on the mental health of both children and young people, and the parents and carers who support them.
Adam’s journey with epilepsy shows resilience and hope—overcoming setbacks through creativity, nature, and support networks to inspire new beginnings.
Shahleen’s epilepsy journey shows courage and resilience—breaking stigma, raising awareness, and inspiring young people to feel less alone
Do you have a question about our work? Please click on the link to find out the best person to email or call.
