I have epilepsy
If you have epilepsy or you've recently been diagnosed, you might be feeling upset, angry or depressed. We have lots of information to support you whilst you adjust.
Are you struggling to cope? Shout is a free, confidential and 24/7 text support service. Text PURPLE to 85258 Find out more
If you have epilepsy or you've recently been diagnosed, you might be feeling upset, angry or depressed. We have lots of information to support you whilst you adjust.
Every single donation - no matter how big or small - helps us to support more children and young people with epilepsy.
Whether you have a child who has been recently diagnosed or if you have a school-aged child with epilepsy, there are many challenges that parents and carers can face.
We’re testing out our new children’s book and we’d love your help. This is your chance to shape something truly special for children with epilepsy.
By understanding what to do when I am having a seizure, you’re helping to keep me safe.
See our latest news and blogs
Manchester scientists have identified one of the most common genetic causes of severe childhood epilepsy, giving families long‑awaited diagnoses and opening the door to better understanding and future treatments.
New research shows epilepsy can have a serious impact on the mental health of both children and young people, and the parents and carers who support them.
Adam’s journey with epilepsy shows resilience and hope—overcoming setbacks through creativity, nature, and support networks to inspire new beginnings.
Shahleen’s epilepsy journey shows courage and resilience—breaking stigma, raising awareness, and inspiring young people to feel less alone
Real stories, expert tips, and honest conversations that matter. Whether you live with epilepsy or support someone who does, this is your space to feel informed, empowered, and connected.
Help us push the boundaries to ensure the voices of children and young people with epilepsy are heard, their voices respected and their ambitions realised.
Do you have a question about our work? Please click on the link to find out the best person to email or call.