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Young Epilepsy Welcomes New Chief Executive
Young Epilepsy welcomes Jane Beaven as new Chief Executive, marking a new chapter for the charity’s mission to support children and young people with epilepsy.
News
Keep up with the latest news from Young Epilepsy and stay informed about stories, campaigns, and changes that could impact you and your family.
Featured
Book Launch: Izzy and Joe’s Camping Adventure
Young Epilepsy and Epilepsy Action have teamed-up to launch a beautifully illustrated storybook designed specifically for children aged 4 to 8 who are living with epilepsy. This book is the result of a unique collaboration shaped by the voices and experiences of children and families affected by epilepsy.
Young people say epilepsy is a significant toll on mental wellbeing
A survey of over 240 young people with epilepsy has found that 77% said living with the condition has had a significant impact on their mental wellbeing. This includes their thoughts, feelings and how they are able to cope with everyday life.
Register your interest for our running events in 2022
Your dedication is making a lasting difference to thousands of young lives across the UK. With your help, more children and young people who are living with epilepsy can get the support they need to thrive and fulfil their potential.
Young Epilepsy Introduces OPM-MEG
National charity, Young Epilepsy is set to revolutionise the diagnostic experience for children with the condition by introducing the world’s first clinical wearable MEG (Magnetoencephalography) brain scanning system to its Health and Research Centre in Surrey. Following an exciting collaboration with experienced MEG researchers, clinicians and engineers from around the world, the team have created a wearable optically pumped magnetometer magnetoencephalography (OPM-MEG) system. The charity has placed this innovative technology, which is integrated into a magnetically shielded room, at the centre of its new diagnostic suite.
New Research on Co-Occurring Autism and Epilepsy
If you have autism, you are more likely to have epilepsy than someone without autism. We know that worldwide approximately 8.4 million people have both conditions, and they face some of the starkest inequalities in the world.
Research Finds School Support Lacking for Children With Epilepsy
A Young Epilepsy research study has found that many children with epilepsy are not getting the support they need at school. More than half of the children reported that some of their teachers and friends did not know that they had epilepsy. Parents have highlighted that school staff should be informed about the impact of epilepsy on learning and behaviour, in order to provide holistic support.
When Young Epilepsy met Olympian, Beth Dobbin
Olympic Athlete, Beth Dobbin, experienced a large seizure 13 years ago, which affected her movement, speech and memory and resulted with some time spent in hospital.
Children with epilepsy are missing out on vital support
Children and young people with epilepsy need better access to mental health support services, with only 15% of Health Boards and Trusts currently able to integrate mental health provision within their epilepsy clinics, according to the latest Epilepsy12 report from the Royal College of Paediatrics and Child Health (RCPCH).
Children Urge PM for Cannabis-Based Seizure Treatment Access
Nine-year-old Thomas Braun delivers a letter to the Prime Minister about his families’ challenges in accessing cannabis-based seizure treatments for his brother.
Young people's views on epilepsy care
Today we’re publishing the results of our young people’s survey, all about their experience of epilepsy care and how this has changed as they’ve grown older.
Epilepsy medication risks in pregnancy reviewed
A review of anti-seizure medication (ASM) use in pregnancy has been published, showing that some ASMs are safer to use than others.