Young boy, smiling in hospital with electrodes stuck to his head for an EEG.

Interested in joining our governance?

Young Epilepsy has been transforming the lives children and young people with epilepsy for over 125 years . We believe that no child should face epilepsy alone. 

Thank-you for your interest in joining our governance.  Young Epilepsy is the UK’s only charity dedicated to children and young people with epilepsy. We provide specialist education, health and support services, amplify young people’s voices, advance research and campaign for improved understanding, inclusion and access to the support they need.

We are looking for exceptional people who can contribute their time, expertise and independent perspective to our governance, and who share our commitment to improving the lives of children and young people with epilepsy and their families.

In return, you will join a committed and collaborative group of trustees and co-opted members, bringing a diverse range of skills, experience and insight to help Young Epilepsy achieve its ambitions and deliver the greatest possible impact.

Current vacancies

Trustees 

We are seeking an experienced and values-led Trustee to join our Board and chair the Governance, People and Remuneration Committee.

This is an important appointment as Young Epilepsy continues to strengthen its governance, leadership and organisational capability. 

The successful candidate will bring substantial senior-level experience in people and organisational leadership, together with the strategic perspective, independent judgement and chairing skills needed to oversee Board composition and succession, trustee and executive appointments, people strategy, organisational development, executive remuneration and performance. They will contribute to the Board’s collective responsibility for Young Epilepsy’s strategy, long-term sustainability, accountability and risk management, while championing safeguarding, inclusion and the needs and voices of the children and young people we serve. 

We particularly welcome candidates with experience of senior people or HR leadership, complex regulated organisations, organisational transformation, SEND, specialist education, health, social care or children’s services.

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Please get in touch 


Co-opted Members

We’re looking for an experienced professional to join our Finance, Audit & Risk Committee (FARC) as a Co-opted Member.

Strong financial stewardship, risk management and governance are essential to achieving our ambitions - and we’re looking for someone who can bring independent insight, constructive challenge and specialist expertise to our Committee.

We’d particularly welcome senior-level experience in finance, audit and assurance, risk management, accounting or organisational sustainability.

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If you are interested in either of these roles get in touch.

Email us 


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About Us

Children and young people with epilepsy have a right to be heard. We stand with them.

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Our Board of Trustees

Our Board of Trustees is the governing body and is ultimately responsible for everything we do and how we do it.

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Our people

Young Epilepsy is a team of young people, researchers, service providers, policy makers, campaigners, and fundraisers, along with an international network of partners.

Please get in touch

If you have the skills and are interested in becoming a trustee, you can check for future vacancies or let us know your interest, and we’ll keep you informed of upcoming opportunities.

Email us