Young boy, smiling in hospital with electrodes stuck to his head for an EEG.

We help you help them

You’re there for children and young people with epilepsy. We are too.

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Epilepsy can disrupt the moments that matter most in childhood - learning, friendships, confidence and independence. That’s why, at Young Epilepsy, we look at the condition through their eyes. We listen to them, learn from their experiences, and shape everything we do around what truly matters to them.

You see this reality every day. We’re here to support your work by offering tools that help make clinical conversations clearer and supportive for families. We also offer support beyond clinical care, at home and at school.

This wraparound approach means families never feel alone, and you have trusted resources to signpost at every stage.

How these tools can help you

These tools are useful:

  • during diagnosis to support understanding with children, young people, and their families
  • when you are sharing at follow‑ups appointments
  • in Continuing Professional Development (CPD) and team training
  • to add to school healthcare briefings.

Everything is designed to help families feel more informed, more confident and less overwhelmed.

Tools you can use in clinic

All designed to help families feel more informed, more confident and less overwhelmed. For you to use during diagnosis and at follow-ups to support understanding.

Tools you can use in clinic

Understanding seizures

Short films that help your patients explain their seizures and how they want to be supported.

Anti-seizure medicines booklet

Young Epilepsy working in partnership with Desitin Pharma Ltd and ChangeMed Ltd has produce the latest version of the guide to anti-seizure medicines booklet and poster.

Request a copy TODAY
Anti seizure medicines booklet

Support beyond clinical care

We know epilepsy services are stretched and young people’s needs don’t stop when the appointment ends. We provide emotional wellbeing support and practical guidance for life at home and school.

Support beyond clinical care

Youth Support services

Our Youth Support team helps young people understand their epilepsy, face challenges confidently, and look ahead with hope.

Support beyond clinical care

Inclusion in education

We work with schools and colleges to ensure they can support students with epilepsy to learn and thrive.

Support beyond clinical care

Age-based support

As their needs change over time, our age‑grouped pages help you easily reach what’s most useful.

Research, insights & professional development

Young Epilepsy is a national leader in research into childhood epilepsy, shaped by the lived experiences of young people themselves.

Research, insights & professional development

Webinars

Expert-led sessions cover a wide range of topics, from the latest research and treatment options to educational strategies and support resources.

Research, insights & professional development

Research & reports

The latest research findings. to stay informed about our ongoing efforts and progress in the field of paediatric epilepsy care.

Research, insights & professional development

Podcast

Each episode features insightful conversations with experts, healthcare professionals, and young people with lived experiences, providing valuable perspectives and practical tips.

Izzy and Joe’s Camping Adventure

A storybook made for children with epilepsy shaped by their voices and their experiences.

Get your hands on our new storybook created for children aged 4–8 living with epilepsy in the UK.

Order your FREE copy TODAY!
Book cover showing children and a goat playing football, as their families cheer

Why Young Epilepsy

We are the only UK charity dedicated exclusively to children and young people with epilepsy. This means:

We see epilepsy differently.
We understand the impact on growth, learning and identity,  and we design support with that in mind.

We co‑create.
Young people shape our health information, research and strategy, ensuring everything feels real and relevant.

We work alongside you.
Epilepsy nurses, paediatricians and neurologists are our closest allies. You help us understand where we can make the biggest difference.

We fill the gaps.
Where clinical services are stretched, we offer emotional, practical and developmental support families can rely on.

Together, we can make epilepsy care more inclusive, informed, and impactful,  because young voices matter.

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