Our research partnership brings together multiple domains of knowledge relating to childhood epilepsy and aims to find solutions to one of the most complex and disabling set of conditions. 2019/2020 marks the 15th year of operation for the partnership and we present what we have achieved over this time alongside a special focus on the impact of our work in the last year (July 2019 to June 2020).
The successes of the year are thrown into sharp relief when the challenges are considered, such as the impact of Brexit on research funding and collaborations and, even greater still, the changes to all lives and pursuits due to the COVID-19 pandemic. We are proud to have contributed to the strategies and advice for continuing epilepsy care and research during the pandemic, as well as supporting families during this difficult time.
Key Highlights
- Scale and Reach
- Over 45 active research projects across medical, educational, and social aspects of childhood epilepsy.
- £24 million secured in research funding.
- 62 primary research papers published, plus 28 reviews and 5 book chapters.
- 140 members joined our new patient and public involvement network, E-CURe.
- Research Focus
- Understanding Causes: Projects exploring genetic origins, brain imaging, and early diagnosis.
- Improving Treatment: Studies on surgery, medication, diet therapies, and wearable brain imaging (MEG).
- Enhancing Support: Research into mental health, education, family wellbeing, and global health initiatives.
Innovations and Impact
- Developed the world’s first wearable MEG scanner for children, improving access to advanced brain imaging.
- Developed the Online Guide for Schools and The Channel, our digital hub for young people.
- Investigated the impact of COVID-19 on young people with epilepsy, highlighting increased seizures and mental health challenges.
- Advanced understanding of autism and epilepsy, aiming to reduce inequalities and improve care.
Collaborations and Awards
- Partnered with Epilepsy Research UK and Autistica to fund new research into childhood epilepsy and autism.
- Hosted the 10th Annual Research Retreat, bringing together over 100 researchers from 6 countries.
- Supported by leading institutions including UCL, Great Ormond Street Hospital, and international experts.
Looking Ahead
We’re focusing on:
- Genetic breakthroughs to uncover unknown causes.
- Targeted therapies to treat epilepsy at its root.
- Global partnerships to improve care worldwide.
