Research Report 2019

Young Epilepsy coordinates and funds research into the causes, treatments and impact of all aspects of childhood epilepsy. We want to secure the best outcome for everyone affected by the childhood epilepsies and we know the best way to do this is through research.

We have initiated 13 new research projects, adding to 20 active projects spanning the clinical, educational and social elements of paediatric epilepsy. We have published 110 peer-reviewed items of primary research and a further 54 chapters in books, reviews and commentaries of expert opinion.

This report features a spotlight on a truly innovative project which will change the UK’s diagnostic and surgical evaluation imaging suite for childhood epilepsy. The MEG Project is a collaboration, arising from the 2019 Paediatric Epilepsy Research Retreat, which will culminate in the world’s first functional magnetically shielded room and OP-MEG system at Young Epilepsy’s headquarters in Surrey. 

It will be the first MEG system accessible to children and people with complex needs without sedation.

Key Highlights

  • Research Growth
    • 13 new research projects launched, adding to 20 active studies.
    • Published 110 peer-reviewed research papers and 54 expert chapters and reviews.
    • Hosted our 9th Paediatric Epilepsy Research Retreat and 6th Masterclass, focusing on rare epilepsies.
  • Groundbreaking Innovation
    • Developed the world’s first wearable MEG brain scanner for children, enabling movement during scans and improving access to advanced diagnostics.
    • Collaborated with UCL, University of Nottingham, and Magnetic Shields Ltd to build a child-friendly, magnetically shielded room at our Surrey campus.
  • Strategic Focus Our research is guided by six goals:
    1. Understanding medical causes of epilepsy.
    2. Exploring how epilepsy affects development and behaviour.
    3. Improving diagnosis and early treatment.
    4. Identifying barriers to learning and educational support.
    5. Enhancing support for families.
    6. Building networks of professionals to shape future care.
  • Notable Projects
    • Studies on genetic causes of early-onset epilepsy.
    • Investigations into the impact of epilepsy on memory, learning, and physical activity.
    • Research into mental health support, dietary therapies, and new imaging techniques.
    • International collaborations to improve epilepsy care globally.

Looking Ahead

We’re committed to translating research into real-world impact—developing tools, treatments, and services that make life better for young people with epilepsy. With collaboration and courage, we’re shaping a future where epilepsy doesn’t limit potential.