Research Report 2018

Young Epilepsy coordinates and funds research into the causes, treatments and impact of all aspects of childhood epilepsy. We want to secure the best outcome for everyone affected by the childhood epilepsies and we know the best way to do this is through research.

Young Epilepsy’s 2018 research report celebrates a decade of progress in understanding and improving care for children with epilepsy. Through pioneering studies, global collaboration, and a focus on education, mental health, and early intervention, we continue to build better futures for young lives affected by epilepsy.

Key Achievements

  • 80+ peer-reviewed publications and 19 expert commentaries.
  • 8 new research projects launched, adding to 19 active studies.
  • Hosted the Mind the Gap VI Symposium and the 8th International Paediatric Epilepsy Research Retreat, fostering global collaboration.

Strategic Research Goals

Our work is guided by six goals:

  1. Understand medical causes of epilepsy – advancing genetic and neuroimaging research.
  2. Explore epilepsy’s impact on development and behaviour – identifying comorbidities and cognitive challenges.
  3. Evaluate early interventions – improving long-term outcomes through timely treatment.
  4. Address barriers to learning – developing educational tools and guidelines.
  5. Support families and improve care systems – integrating mental health and holistic support.
  6. Build a multidisciplinary research network – nurturing future talent and collaboration.

Education Research Highlights

  • CHESS Study revealed 95% of children with epilepsy struggle academically, with high rates of undiagnosed conditions like ADHD and autism.
  • SEEN Study showed significant mental health risks for parents, especially mothers.
  • WINS Project is developing national guidelines for schools, informed by children, parents, and teachers.

Innovative Clinical Research

  • EpiPEG and KIWE studies focus on early diagnosis and dietary therapy in infants.
  • MICE Project integrates mental health support into epilepsy care.
  • MELD Project uses AI to detect brain lesions for surgical planning.
  • Cannabidiol trials explore new treatments for drug-resistant epilepsy.

International Collaboration

  • EpiCARE Network connects 28 centres across Europe to improve care for rare epilepsies.
  • ICISS Trial and RESCUE ESES investigate best treatments for infantile spasms and rare syndromes.

Looking Ahead

We’re excited to expand our work in:

  • Genetic discovery
  • Digital health tools
  • Mental health integration
  • Education support systems

With over £25 million in funding secured, we remain committed to transforming lives through research, advocacy, and collaboration.