Annual Report 18-19

Our purpose at Young Epilepsy is to help create a society in which children and young people living with epilepsy can thrive and fulfil their potential, have their voices listened to and respected, and their ambitions realised.

Young Epilepsy's annual review looks at the range of work we have carried out over the course of the year. It explains how donations, contracts and fundraising activities have helped pay for our services. 

It has been a most invigorating year as we stand on the threshold of achieving new ambitions as a national charity, inspired by the voices of young people living with epilepsy today, with al their hopes and dreams for the future.

This has also been the year when we more closely involved young people and families in shaping the future direction of the charity, with our leadership team working directly with a group of young people and listening to their voices. The Trustees have also had the opportunity to meet directly with our young people.

Key Achievements

Health & Research

  • Delivered specialist diagnostic and treatment services at our Health and Research Centre.
  • Advanced research into epilepsy’s impact on cognition, behaviour, and mental health.
  • Continued development of wearable brain imaging (OPM-MEG) and psychological interventions for children with epilepsy.

Education & Support

  • St Piers School and College provided tailored education for children with epilepsy, autism, and complex needs.
  • Supported students to achieve personal and academic goals through individualised learning plans.
  • Delivered epilepsy awareness training to schools and professionals across the UK.

Voice & Advocacy

  • Launched campaigns to raise awareness of epilepsy and reduce stigma.
  • Engaged with policymakers to improve access to education and healthcare.
  • Supported young people to share their experiences and influence change.

Reach & Engagement

  • Over 1 million people reached through digital campaigns and social media.
  • Thousands of families supported through our helpline, resources, and events.
  • Expanded our network of professionals and researchers through national and international collaborations.

Financial Overview

  • Income: £15.3 million
  • Expenditure: £15.1 million
  • Invested in services, research, and infrastructure to improve outcomes for young people.

Looking Ahead

We remain committed to:

  • Expanding our research programme to better understand epilepsy.
  • Improving access to diagnosis and support.
  • Empowering young people and families to thrive.

Together, we’re building a society where every child with epilepsy is seen, heard, and supported.