Policies & reports

Annual Report 16-17

Our purpose at Young Epilepsy is to help create a society in which children and young people living with epilepsy can thrive and fulfil their potential, have their voices listened to and respected, and their ambitions realised.

Research Report 2015/16

Young Epilepsy coordinates and funds research into the causes, treatments and impact of all aspects of childhood epilepsy. We want to secure the best outcome for everyone affected by the childhood epilepsies and we know the best way to do this is through research.

Annual Report 15-16

Our purpose at Young Epilepsy is to help create a society in which children and young people living with epilepsy can thrive and fulfil their potential, have their voices listened to and respected, and their ambitions realised.

Annual Report 14-15

Our purpose at Young Epilepsy is to help create a society in which children and young people living with epilepsy can thrive and fulfil their potential, have their voices listened to and respected, and their ambitions realised.

Research Report 2014/15

Young Epilepsy coordinates and funds research into the causes, treatments and impact of all aspects of childhood epilepsy. We want to secure the best outcome for everyone affected by the childhood epilepsies and we know the best way to do this is through research.

The CHESS Study 2014

This study arose from a senior politician saying to us “I know that people with epilepsy are not counted in schools and I know that they have a wide range of cognitive and behavioural problems but you have to do something that brings this to everyone’s attention”. Our response was to have four international annual meetings that highlight these problems, a new course for professionals and this; The CHESS Study.

Annual Report 13-14

Our purpose at Young Epilepsy is to help create a society in which children and young people living with epilepsy can thrive and fulfil their potential, have their voices listened to and respected, and their ambitions realised.

Research Report 2013/14

Young Epilepsy coordinates and funds research into the causes, treatments and impact of all aspects of childhood epilepsy. We want to secure the best outcome for everyone affected by the childhood epilepsies and we know the best way to do this is through research.

Improving Care in Epilepsy 2013

The report provides key findings which look beyond the often-quoted statistics, to identify the real barriers and enablers to providing better care. In its key recommendations, it provides a proposed set of shared goals towards the aim of improving epilepsy services for children and young people. Policy-makers and commissioners must take these recommendations and work together - in collaboration with professionals and with children, young people and their parents - in order to achieve lasting and transformational change. It is only through this process that the type of service that children and young people with epilepsy deserve can be delivered.

Annual Report 12-13

Our purpose at Young Epilepsy is to help create a society in which children and young people living with epilepsy can thrive and fulfil their potential, have their voices listened to and respected, and their ambitions realised.