Young woman looks seriously to the camera, holding  one arm protectively across her body.

I have epilepsy

We’re here for you

Epilepsy can be frightening and it can feel lonely.  Sometimes people just don't understand what you are dealing with. 

Young people living with epilepsy have told us how important it is for them to understand their condition, and how making connections with other young people and hearing their experiences really helps. 

From tips, guidance  and real stories about life with epilepsy, to support services and opportunities to have your say and influence to the world around you, we're here for you. 

We know that what you need can change depending on your age—so we’ve made it easier to find the right support, info, and community for you. Whether you're just starting out, figuring things out, or looking for something specific, our pages are grouped by age to help you get straight to what matters most.

Find support and information that's right for you

Find support and information that's right for you

Children – 4 to 7 years

Does your child aged 4–7 have epilepsy? Find support for young children with epilepsy and their families. Help with school, routines, and building confidence.

Find support and information that's right for you

Tweens – 8 to 12 years

Helping tweens make sense of epilepsy. Find support for children aged 8–12 with epilepsy. Learn about seizures, school support, and growing independence.

Find support and information that's right for you

Teenagers – 13 to 18 years

Are you between 13 and 18 and living with epilepsy? You’re not alone. We’ve got support to help with school, your emotions, becoming more independent, and loads more.

Find support and information that's right for you

Young adults – 18 and over

Are you 18 or older and living with epilepsy? We’re here for you. Get support with school, your feelings, becoming more independent, and loads more.

Find support and information that's right for you

24/7 Text Support

Young Epilepsy partner with Shout, a free, confidential and 24/7 text support service for anyone in the UK who is struggling to cope.

You may be interested in...

You may be interested in...

Youth Support

Our Youth Support team works with young people and their families to help them through their diagnosis and beyond, to better understand their rights, as well as helping them get access to the right services and support. 

You may be interested in...

The Channel

An online space for young people living with epilepsy. Get the information and life hacks that can help you. No jargon. No judgement. Just real information about the things you need to know.

You may be interested in...

Youth Voice Network

The Youth Voice Network is a community of young people with epilepsy, for young people with epilepsy.

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Are you struggling to cope?

Shout is a free, confidential and 24/7 text support service for anyone in the UK

To start a conversation, text PURPLE to 85258

Find out more