Together, we create what’s possible
Your generosity helps transform the lives of young people with epilepsy.
Through the generosity of trusts, foundations and individual major donors, Young Epilepsy delivers life-changing programmes, campaigns and research. Here, we share the impact of that support and the difference our shared purpose can make.
Young people with epilepsy, and their parents, told us about their experiences of epilepsy support at school.
They are unnecessarily missing out on their childhood and their futures are being put at risk, because people don’t understand epilepsy and how it can be different for everyone.
This highlights the need for better education and training to ensure the safety and well-being of students with epilepsy.
This shows that we need to create more job opportunities and support for people with epilepsy to help them find work.
With support from the National Lottery Reaching Communities Fund and Bernard Lewis Family Charitable Trust, Young Epilepsy’s personalised support to over 450 children, young people and families is growing. Through one-to-one sessions, group support and collaborations with schools and care teams, we help young people feel more informed, connected and confident.
…Since speaking to the youth worker, we as a family feel like we have a lot of support and now know where to turn. Our youth worker has been brilliant with our child…
See where your support can make a difference
With the generous support of our partners and major donors, Young Epilepsy is building a growing national movement of young people with epilepsy who are leading change. Through the Youth Voice Network and in-person Roadshows, young people are influencing policy, raising awareness and making their voices heard across the UK.
I really enjoy being part of the Youth Voice Network…It is such a close, supportive and caring network of people who are always happy to help...I think the world of my Young Epilepsy family and would encourage anyone to join...
Amelia, Youth Voice Network member
With the support of generous funders, Young Epilepsy launched the #UnderstandMyEpilepsy campaign to draw attention to the fact that 1 in 3 children with epilepsy are not getting the support they need at school. Led by young people, the campaign called for every child with epilepsy to have an Individual Healthcare Plan – gathering over 16,000 signatures that were presented to education leaders in all four UK nations, urging action so every child can be safe, supported and fully included in school life.
“I wanted to be a part of this campaign because I want people to be aware of the struggles. I want them to get the help so that they can succeed in their educational journey. I don't want anyone to go through what I went through.” - Zunera - Youth Voice Network member featured in the #UnderstandMyEpilepsy campaign
With the support of the George E Neville Foundation, research partners and our donors, our health and research programmes are dedicated to improving diagnosis, treatment and long-term outcomes for children with epilepsy.
Young Epilepsy is piloting Acceptance and Commitment Therapy (ACT) groups to support the mental health of young people with epilepsy and their families. These online sessions have already shown strong engagement and positive feedback, and new parent-focused resources are now in development.
Find out more about this groundbreaking initiative
The Wolfson Foundation was a key partner in equipping our Diagnostic Suite with the world’s first OPM-MEG brain scanner, developed in collaboration with leading universities and designed specifically for children. Their grant funded the purchase of OPM-MEG sensors and IT equipment, transforming the epilepsy diagnostic process with scans that are faster, more comfortable and more accurate, leading to earlier interventions and better outcomes for families.
See where your support can make a difference in Epilepsy Research
With the support from organisations like The Millie Community, Ottolenghi, Veronica Beard and more, Hear Her Voice is Young Epilepsy’s award-winning fundraising event that centres the voices of women and girls impacted by epilepsy. Bringing together philanthropists, business leaders, young people and brand partners, the event raises vital funds for our work while amplifying stories that inspire change.
“I learnt a lot today and was moved to tears by the panelist’s stories of courage, resilience and advocacy. Very special event.” - Becky Cowan-Bowler, Hear Her Voice attendee
Trusts and foundations and donations of all sizes – across the UK and internationally – are vital to improving the lives of children and young people with epilepsy. We welcome grants and donations that provide core funding, boost innovation and help scale our services to reach even more families, especially those most in need.
We provide regular, tailored reports to show the tangible impact of your support, and we’re always happy to explore how you can stay connected to the work you're making possible and the outcomes that matter most to you.
If you’re interested in exploring funding opportunities or learning more about how your support can create meaningful change, please get in touch via the form below.
Do you have a question about our work? Please click on the link to find out the best person to email or call.
