A new report charting children’s first year of epilepsy care shows families facing delays and barriers to diagnosis and treatment. The latest Epilepsy12 report from the Royal College of Paediatrics and Child Health (RCPCH) highlights the experiences of children across England and Wales in 2018-19.
More seizures, more stress and appointments being cancelled are among the challenges faced by young people with epilepsy during the pandemic, Young Epilepsy has found.
Young Epilepsy and Epilepsy Research UK are delighted to announce the launch of our first joint venture - a £300,000 Fellowship Award for research into childhood epilepsy.
Applications opened last week for the first-ever Epilepsy Research UK Young Epilepsy Fellowship Award. This unique and potentially life-saving collaboration aims to improve epilepsy treatment for young people by addressing the causes, diagnosis and clinical management of childhood epilepsies.
One in ten (11%) women who are currently taking the epilepsy medicine valproate are unaware of the possible risk of birth defects if taken in pregnancy. Furthermore, one in five (18%) don’t know that, when taken in pregnancy, the medicine could also cause learning and developmental delays in children. These worrying figures come from a newly published survey by the charities Young Epilepsy, Epilepsy Action and Epilepsy Society.
This year’s theme was ‘More Than Seizures’ and we know that epilepsy is more than just a seizure, it can affect young people in so many other ways, so we joined with other epilepsy charities across the UK to raise awareness of these challenges.
Young Epilepsy have released their 10th annual research report.
Seven-year-old Max shares his epilepsy story and tells us why he and his family are taking on a challenge for Purple Day.
As preparations for National Epilepsy Week continue to build, Young Epilepsy have announced the launch of a brand new online guide for schools, which will help teachers to better support young people with epilepsy in their care.
People who have both autism and epilepsy face some of the starkest inequalities in the world. We know that worldwide approximately 8.4 million people have both conditions. On average, they have poor quality of life, poor health and die early. Research into the relationships and interactions of the these conditions is vital to early diagnosis, early intervention and ultimately, improving lives.
