News

Keep up with the latest news from Young Epilepsy and stay informed about stories, campaigns, and changes that could impact you and your family.

A young boy wearing a protective helmet

Young Epilepsy Introduces OPM-MEG

National charity, Young Epilepsy is set to revolutionise the diagnostic experience for children with the condition by introducing the world’s first clinical wearable MEG (Magnetoencephalography) brain scanning system to its Health and Research Centre in Surrey. Following an exciting collaboration with experienced MEG researchers, clinicians and engineers from around the world, the team have created a wearable optically pumped magnetometer magnetoencephalography (OPM-MEG) system. The charity has placed this innovative technology, which is integrated into a magnetically shielded room, at the centre of its new diagnostic suite.

An educator speaks gently to a young student, who is holding his hair in frustration.

Young Epilepsy research shows lack of school support for children with epilepsy

A Young Epilepsy research study has found that many children with epilepsy are not getting the support they need at school. More than half of the children reported that some of their teachers and friends did not know that they had epilepsy. Parents have highlighted that school staff should be informed about the impact of epilepsy on learning and behaviour, in order to provide holistic support.

Children with epilepsy are missing out on vital support

Children and young people with epilepsy need better access to mental health support services, with only 15% of Health Boards and Trusts currently able to integrate mental health provision within their epilepsy clinics, according to the latest Epilepsy12 report from the Royal College of Paediatrics and Child Health (RCPCH).

Young people's views on epilepsy care

Today we’re publishing the results of our young people’s survey, all about their experience of epilepsy care and how this has changed as they’ve grown older.

Survey – Young people’s experiences of epilepsy care

We’re asking young people to tell us how their experience of epilepsy care has changed as they’ve gotten older. The survey will help us understand what information or support young people might like to receive, as well as how healthcare for young people with epilepsy can be improved.