How to use the Sharing Section

You may need to share your My Epilepsy information with friends, family and carers, or professionals such as Clinical Teams, school nurses or social workers, so that they can access your records and understand your condition.  You can manage their access via the pending, past and access log.​

 

To find out more, visit the PKB manual sharing section here PKB Manual - Sharing (patientsknowbest.com)

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Young Epilepsy Consultant Nurse tells how to best use the Sharing Section on My Epilepsy

Watch this video to find out more on using the sharing section on My Epilepsy.

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How to invite a carer on PKB

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Use Friends/Family tab to invite your/your child’s wider support group to share your/your child’s account via the Add Carer Button. 

Being added as a carer 

You may be invited to care for someone else on PKB, by receiving an email invitation.  

  1. Accept the invitation, click the link to accept the invitation if you don’t have a PKB account already, you will be able to create an account.  When you accept the invitation you will have access to your child’s account on their behalf

  2. Review share settings for Self Management Team team
    (Please note that Young Epilepsy’s Self Management team site is confidential and Young Epilepsy do not have access to your data even if you set access through this page)

  3. Click Save and Continue to Patients Know Best


Note: Although the screen may show that the Young Epilepsy Self Management Team can see any areas you checked, your record is confidential. The Young Epilepsy Self Management Team can see no data.

Tip: You may want to consider co-using your child’s account with your child if they have the capacity/maturity to use it. They will only be viewing information that the child, you or other carers have added. An unverified account is not connected to the NHS. If you are co-using your child’s account with your child, allow them to log in using the email address you have set up for them, then entries will easily be identifiable as to who made each entry, you, your child, one of your carers.

Remember: Anyone over 16 can create a PKB account for free, using their NHS login, so you can invite members of your wider support group to have access to your/your child’s account. So Dad, mum, auntie Jane, and the school nurse could all be accessing the account to record information, log seizures or to just make notes about your/your child’s epilepsy. 

Get in touch

Do you have a question about My Epilepsy? Do you need technical support? Email us at PKBsupport@youngepilepsy.org.uk

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