Families desperately need support following a diagnosis of epilepsy
When a child is diagnosed with epilepsy, everything changes. Their world falls apart. Families feel frightened, lonely and overwhelmed.
"For Jo’s family, it began when her son Rafferty was diagnosed at just three years old.
We were blue lighted to hospital. I was convinced Rafferty was going to die. To this day seizures fill me with fear.
We felt lost when we got an epilepsy diagnosis. You are told a huge, life-changing diagnosis. Then you’re left to your own devices.
It’s scary and it’s lonely."
- Jo, Rafferty's mum
Then seven months later, her older son Fin experienced a similar seizure. The shock was devastating.
Watch Jo in this short video. She bravely shares more about her children’s epilepsy diagnosis and why your donation would mean so much to her family this Christmas.
You can help families like Jo’s at a time of crisis
It totally floored me. I was so panicked. I had such vivid images of Rafferty’s first seizure.
I felt like we were just kind of getting our heads around things and accepting Rafferty’s diagnosis. And then this was happening, it felt like all over again.
Nearly every hour in the UK, another young life is thrown into crisis
Every hour, another child or young person is diagnosed with epilepsy. Another life turned upside down. Yet too often, families are left to navigate this life-changing diagnosis alone.
