The children and young people's epilepsy charity
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Donate Shop Careers Main Number: 01342 832243 (Mon-Fri, 8:30am-5pm)
Helpline: 01342 831342 (Mon-Fri, 9am-3pm)


I am Charlie and I am 21 years old. I was diagnosed with Lennox Gastaut Syndrome when I was 2 ½ years old. I have always had problems with seizures right the way through school. I have absence seizures daily and  tonic clonic are hardly ever now. I have a VNS which is really helping with my seizures. I am leaving college in July and I would like to become more independent in the future as I have found it quite hard to identify my support needs when I leave college and move on. I am hoping that by being part of the Young Reps I will learn and spread the word about epilepsy and help others identify support needs so as they can have a smoother transition.

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Misdiagnosis rates in the United Kingdom are between 20–31%.

Cyber EssentialsFundraising RegulatorYoung Epilepsy is the operating name of The National Centre for Young People with Epilepsy Charitable Trust.
Registered Charity number 311877 (England and Wales)

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