Charlie | Young Reps | Who we are | About Us


I am Charlie and I am 21 years old. I was diagnosed with Lennox Gastaut Syndrome when I was 2 ½ years old. I have always had problems with seizures right the way through school. I have absence seizures daily and  tonic clonic are hardly ever now. I have a VNS which is really helping with my seizures. I am leaving college in July and I would like to become more independent in the future as I have found it quite hard to identify my support needs when I leave college and move on. I am hoping that by being part of the Young Reps I will learn and spread the word about epilepsy and help others identify support needs so as they can have a smoother transition.

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More than one in five people with epilepsy have learning or intellectual disabilities.

Cyber EssentialsFundraising RegulatorYoung Epilepsy is the operating name of The National Centre for Young People with Epilepsy Charitable Trust.
Registered Charity number 311877 (England and Wales)

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