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Don't be afraid - give your child a voice

… for children and young people. … Understand epileptic seizures, their types, causes, and management. Find … for living with epilepsy. … Diagnosing epilepsy … Epileptic seizures … When Lisa’s young son Xavier had his first … to take in." Managing medication and triggers  Xavier began anti-seizure medication in March. The first dose of Keppra …

I am Jasmine

… I'm 17 years old.  My epilepsy means I have tonic-clonic seizures. They’re big ones. I fall to the floor and shake. … long. And yeah, I have minimal control, so I have prolonged seizures.  Before I have a seizure, I kind of know I'm gonna … chest infection could trigger a seizure. And if I miss one anti-seizure medication, it can trigger one. There’s also my …

Deep brain stimulation for epilepsy  

… (DBS) is a treatment for epilepsy. It helps to reduce seizures by sending small electrical signals to specific … calm the brain when it starts acting in a way that causes seizures. … How does deep brain stimulation for epilepsy … epilepsy has not responded well to at least two different anti-seizure meds . For example, your seizures haven’t …

Epilepsy and autism

… On this page we talk about the characteristics of autism, seizures, signs to look out for, diagnosis, treatment and … autism?   There is no evidence that epilepsy or epileptic seizures cause autism epilepsy and autism may share a … who are not autistic.  Treatment will usually include anti-seizure medications. If those do not work, there are …

Petition launched for mental health support in epilepsy care

Epilepsy is not a mental health condition, yet children and young people with epilepsy are four times more likely to develop mental health problems than their peers. To help address the situation, Young Epilepsy has now launched a petition to call on healthcare leaders across the UK to ensure that every child with epilepsy is offered mental health screening and support as an integrated part of their paediatric epilepsy care.

Young people call for mental health support in epilepsy care

… of the diagnosis and the fear of not knowing when another seizure would happen. “Going from being a healthy child to then suddenly having seizures and experiencing medication side effects was very … of epilepsy (such as a brain injury), side effects from anti-seizure medication, as well as the anxiety, stigma and …

What I Need In School WINS 2023

Children with epilepsy are at a greater risk of learning and behavioural difficulties than children without epilepsy. Despite this, there is a lack of research exploring the views and experiences of young people with epilepsy, their parents and school staff with regards to educational supports that could aid learning in children with the condition.

Top 10 school tips for putting an IHP into practice

… Remember that epilepsy symptoms can change rapidly, anti-seizure medication can have strong side effects, and it can … is stored, who to ask or alert, and how to report seizures. A proactive meeting will help bring confidence to …

Lennox-Gastaut syndrome  

… history, the doctor will ask about any signs of previous seizures, especially infantile spasms.   The doctor may also ask you about any … such as tuberous sclerosis   A history of having Infantile spasms (known as West syndrome)   … How is …

Taking care of yourself and your child

… healthcare plan templates and a form for keeping a detailed seizure record. … Reacting to your child’s diagnosis Many … with a medical condition. Find out more about epilepsy seizures and epilepsy treatments . … A good night’s sleep In … out of the house, you may need to pack your child’s regular anti-seizure medication, because you’ll need to keep to …