At diagnosis | Help and support for parents and carers | For parents and carers

At diagnosis

If your child has been diagnosed with epilepsy or has had seizures but doesn’t have a diagnosis yet, then we are here for you.

Our Parent’s Handbook tells you everything you need to know about epilepsy, its treatment and taking care of a child with epilepsy. We also produce seizure diaries for children and young people.

Our helpline team are here to listen and support you too. We can’t offer medical advice but the team can provide approved information on a range of issues that parents often want to know, including seizure monitors, benefits and much more.

Being a parent or carer of a child with epilepsy can be distressing. One of the biggest challenges you can face...

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Caring for a baby, infant or young child who is experiencing seizures can be distressing. This guide gives parents and carers...

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Take a look at our “All about epilepsy” magazines which are for children and young people who want to learn more...

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The consultants based at our world class health centre have carried out research work on seizure monitoring in young people with...

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We worked with pharmaceutical company Viropharma on an educational campaign aimed at supporting parents and carers of children with epilepsy The...

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Young Epilepsy's helpline is open for anyone who is affected by epilepsy. Whether you have epilepsy yourself, are a parent or...

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If you see someone having a seizure, there is little you can or should do. It is really hard to see,...

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Helpline: 01342 831342 (Mon-Fri, 9am-3pm)

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