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Our vision, purpose & values

Together we will create a society where children and young people with epilepsy thrive.

Our strategy for 2020-2024 sets out our approach to making this vision a reality.

Our vision

We exist to create a society where children and young people with epilepsy are enabled to thrive and fulfil their potential.  A society in which their voices are respected and their ambitions realised.


Our purpose

Is to inform, educate, inspire, and engage the nation, through young people with epilepsy living ambitious and fulfilled lives.


Our values

We work together to create a society where children and young people are not excluded simply because of their epilepsy.

Young people are at the centre of everything we do Our work is driven by the experience and voices of young people. We support young people to be advocates for change. 

We work together to make a greater difference. We believe a culture of partnership and collaboration is the best way to achieve positive lasting change for young people with epilepsy. 

We are courageous and ambitious for change We promote and uphold the rights of children and young people with epilepsy. We campaign for their voices and best interests to be respected.

Our programmes

Together, we can create a society where children and young people with epilepsy are heard and can live happy, fulfilled lives and our three programmes of work are designed to achieve this:

Our programmes

Voice & support

Ensuring children and young people with epilepsy are at the centre of all we do, we campaign with them for their rights, support them in school and college, and provide innovative tools, information, and practical help for living day-to-day life.

Our programmes

Health & research

We coordinate and fund research into the causes, treatments and impact of childhood epilepsy and we offer diagnostic assessment for children with epilepsy and other neurological conditions.

Our programmes

Specialist education

St Piers is an innovative and creative environment for children and young people with special educational needs and disabilities. These can include epilepsy, autism, and severe learning difficulties.

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How you can help

Children and young people with epilepsy are frightened, lonely and their condition is often misunderstood. You can help change that.

Get involved today