Our Board of Trustees

Young Epilepsy's Board of Trustees is the governing body and is ultimately responsible for everything we do and how we do it.

The board governs the affairs of the charity, ensuring that we are well run and deliver charitable outcomes that benefit children and young people with epilepsy.

Meet our board of Trustees

Jane Ramsey Chair of Trustees

Chair of Trustees

Jane Ramsey

Jane Ramsey Chair of Trustees

Chair of Trustees

Jane Ramsey

I have been the Chair of Young Epilepsy’s Board of Trustees since October 2016.

 

Before joining Young Epilepsy, I was Chair of Cambridge University Hospitals NHS Foundation Trust for 4 years, joining in November 2012 from University College Hospitals where I was vice chair.  Previously I chaired and had been a non-executive/trustee on the Boards of a wide range of public and not-for-profit organisations including the Council of the Royal Pharmaceutical Society of Great Britain, the Department of Health Audit and Risk Committee, the Royal College of Veterinary Surgeons, a London housing association, following years as a senior lawyer in local government.

 

I was a member of the Committee on Standards in Public Life which advises the Prime Minister on ethical standards in public life from 2016 to 2020. 

 

Following the Equality and Human Rights Commission report into antisemitism, I was appointed as Senior Advisor on Standards and Ethics to the Labour Party.

Profile photograph of Professor Helen Cross taken outside in a garden

Trustee

Professor Helen Cross OBE

Profile photograph of Professor Helen Cross taken outside in a garden

Trustee

Professor Helen Cross OBE

I was appointed to the Young Epilepsy Board of Trustees in 2008.

 

I am the Prince of Wales’s Chair of Childhood Epilepsy and Director of the UCL-Great Ormond Street Institute of Child Health (UCL GOS ICH). I am also Honorary Consultant in Paediatric Neurology, Great Ormond Street Hospital for Children NHS Foundation Trust, London, and Young Epilepsy, Lingfield, UK.

 

I’ve been involved with Young Epilepsy for many years since my medical training. Working with the charity has been a real privilege, allowing me to broaden the range of relevant research topics and bring user experience to the table.

 

I lead the research programme across UCL GOS ICH, Great Ormond Street Hospital and Young Epilepsy. The aim of my research has been finding ways to improve outcomes in early-onset epilepsy, specifically in assessing the roles of surgery, dietary therapies and other novel treatments.

 

I’ve held key leadership roles, nationally and internationally. I’m currently President of the International League Against Epilepsy 2021–25 (the global body for professionals involved in the care of people with epilepsy) and Clinical Advisor to the National Children’s Epilepsy Surgery Service.

 

I was Clinical Advisor to the update of the NICE guidelines for Childhood Epilepsy 2018–22. I’ve published more than 400 peer-reviewed research publications, reviews and book chapters, and have received several awards for my work.

 

I’m married with three adult daughters, one of whom is a doctor.

Profile photograph of Professor Katie Stevens taken outside in a garden

Trustee

Katie Stevens

Profile photograph of Professor Katie Stevens taken outside in a garden

Trustee

Katie Stevens

I was appointed to Young Epilepsy’s Board of Trustees in October 2020.

 

Being diagnosed with epilepsy at an early age, I quickly recognised the challenges people with health conditions and their families can face, and how important life really is.

 

As a result, I’m passionate about equality, diversity and inclusion, with a strong desire to raise awareness and to support people to discover their inner confidence. I’m determined to help create a society that understands epilepsy and allows children and young people to thrive and be themselves.

 

That’s why I decided to retire early from my successful career as a Chartered Accountant and dedicate myself fully to supporting, in voluntary roles, the most vulnerable in our communities.

 

I am presently the Chair of Northumbria Primary Care and Associate Non-Executive Director for Northumbria Healthcare NHS Foundation Trust.

 

I am also Trustee and Chair of the Finance, Audit and Resources Committee for Ascent Academies’ Trust, which provides education and support for young people with special educational needs; and Trustee for River Tees Multi Academy Trust, dedicated to supporting the most disadvantaged learners.

 

I’m a Member of Ethos Academy Trust, which provides alternative provision for young persons, a Trustee and Chair of the Audit and Risk Committee for Scope; Trustee and Chair of the Audit and Risk Committee for Camphill Village Trust; Trustee and Equality, Diversity and Inclusion Champion for Epilepsy Action; Trustee and Chair of the Audit and Risk Committee for Orpheus Trust; and Finance Director for the Northumberland Cricket Board.

 

Outside of my voluntary work I love spending time with my husband, in particular trekking together through the beautiful Northumbrian countryside.

Lesley Steeds a member of our EGB

Trustee (Surrey County Council Representative)

Lesley Steeds

Lesley Steeds a member of our EGB

Trustee (Surrey County Council Representative)

Lesley Steeds

I joined the Young Epilepsy Trustee Board and Education Governing Body in June 2017 serving as Surrey County Council’s representative.

 

Having worked voluntarily in the community for many years, my experience as a governor of two schools in Tandridge and of working at Headway, Uckfield with ABI clients mean I am able to offer valuable insight and perspective.

 

My career started in accountancy and as a founder member of the Women’s Association for Corporate and Certified Accountants I moved on to gain a teaching certificate and lecture in Business Studies.

 

Today, I have completed a three-year counselling course, qualified as a hypnotherapist and studied other complementary and alternative therapies.

 

My involvement in local politics stretch back many years and in May 2024 I was re-elected as the District Councillor for the Wards of Dormansland and Felbridge.

Profile photograph of Simon Neville taken outside in a garden

Trustee

Simon Neville

Profile photograph of Simon Neville taken outside in a garden

Trustee

Simon Neville

I joined Young Epilepsy’s Board of Trustees in September 2020.

 

As a chartered certified accountant by training, I moved into the more specialised areas of corporate finance and treasury some 30 years ago. 

 

At Young Epilepsy I am Vice Chair and also chair the Finance, Audit and Estates committees, where I apply my professional skills to ensure we efficiently manage the financial management of the organisation to enable us to deliver our strategy and charitable objectives.

 

I was attracted to Young Epilepsy because it’s a purpose-driven charity that makes a massive difference in people’s lives and improves health outcomes. This sense of purpose, coupled with the contributions I can make in marketing, financial and estate management make being a trustee hugely rewarding.

 

I’ve previously been a governor of a London college and enjoy working with young people.

 

I currently advise Taulia, a leading Fintech (technology to improve and automate working capital solutions) owned by SAP. I previously held senior leadership positions in Centrica, a major energy provider, as well as Reckitt Benckiser, a global consumer group and the UK’s 11th largest listed company.

 

I like to travel widely, have managed to visit almost 80 countries and lived in eight. I also enjoy cooking and tennis.

Profile photograph of Tamsin Jones taken outside in a garden

Trustee

Tamsin Jones

Profile photograph of Tamsin Jones taken outside in a garden

Trustee

Tamsin Jones

I am a serving Police Officer with the Metropolitan Police Service working across frontline policing and more recently within Learning and Development. Prior to joining the MPS, I held a number of senior leadership roles within the education sector both in schools and further education colleges across Surrey, London and Worcestershire.

 

I have a wide range of leadership and management experience and have been responsible for leading organisational turnaround, curriculum development, quality improvement, commercial growth and an enhanced learner experience.

 

My educational background includes a degree from Cardiff University, a Post Graduate Certificate in Education and an MBA from Warwick University.

I  joined the Education Governing Body in October 2020 and I am currently Chair.

Profile photograph of Amit Bali taken outside in a garden

Trustee

Amit Bali

Profile photograph of Amit Bali taken outside in a garden

Trustee

Amit Bali

I joined the Young Epilepsy Board of Trustees in November 2020. Through my trustee role I get to help, support and oversee the great work Young Epilepsy does for children, young people and families affected by epilepsy. 

 
I’m lucky to have had a long association with Young Epilepsy, joining as a Darzi fellow in 2014 and continuing with research and policy projects. I’m particularly proud of the work I’ve carried out in partnership with young people and families, and I’ve seen first-hand the fantastic work Young Epilepsy does, and the difference it has made to their lives. 

 

I work as a Consultant Paediatrician with Expertise in Epilepsy at Barts Health NHS Trust and am currently the Epilepsy Regional Clinical Lead for North Thames. I bring my healthcare knowledge and experience to the Young Epilepsy Board and its Health Services Committee. 

 

My two young children keep me busy, but I still find time to enjoy football and running. I even fundraised for Young Epilepsy by running a marathon in my younger days! 

Tamsin Jones Chair Designate

Trustee

David Pierpoint

Tamsin Jones Chair Designate

Trustee

David Pierpoint

I was appointed as a trustee in October 2023. 

 

I have lived close to St. Piers School & College for over 20 years and have always been impressed with the excellent care and support provided by Young Epilepsy to children and young adults with severe forms of epilepsy and related conditions. The importance of the role of St Piers school and college became even more apparent to me in 2018 when I too was diagnosed with epilepsy.

 

My diagnosis motivated me to become more actively involved in Young Epilepsy and I was appointed as a governor in July 2019. Today I am proud to be the Vice Chair of the Education Governing Body and the Chair of the Finance & Resources Sub-Committee and to be able to help the Young Epilepsy management team and teaching staff.

 

In my spare time I am a keen cyclist and runner and often enjoy jogging around the campus and meeting the pupils and staff. 

Tom Hadley Young Epilepsy Trustee head shot

Trustee

Tom Hadley

Tom Hadley Young Epilepsy Trustee head shot

Trustee

Tom Hadley

I was appointed as a Trustee of Young Epilepsy in October 2023.

 

My sister, Elizabeth, lived with epilepsy for many years and dedicated her working life to caring for young people with disabilities. She remains an inspiration and I fundamentally believe in the vision of creating a society where young people with epilepsy can thrive and fulfil their potential.

 

I have a track record of influencing public policy and of building partnerships between education, charities, government, and employers. This has been at the heart of my past work on initiatives like Disability Confident.

 

My current projects for the International Labour Organization (ILO) shine a light on innovative approaches to community engagement and to delivering social impact from across the world. I look forward to reaching into this to support the pioneering work of Young Epilepsy.

 

I am also the founder of HadleysComment, a provider of training, coaching and consultancy services as well as public speaking and event facilitation support. I launched my own business following several years as Policy and Campaigns Director and a member of the Senior Leadership Team at the Recruitment & Employment Confederation (REC).

 

Being a Trustee and Board Member of Young Epilepsy is an honour and a privilege; it is an opportunity to work with a great team and to make change happen.

Paolo Morris, Young Epilepsy Trustee

Trustee

Paola Morris

Paolo Morris, Young Epilepsy Trustee

Trustee

Paola Morris

I was appointed to the Young Epilepsy Board of Trustees in November 2023. I am the Lead Trustee for Safeguarding.

 

My work on the board aligns with my belief that all children and adults, irrespective of age, gender and disability, should enjoy the rights that are inherent to their human dignity without discrimination of any kind, and that society must adapt its structures to ensure this happens.

 

A native Italian, I have spent most of my adult life in the UK prior to moving to Beijing 10 years ago, as my first international posting with Education in Motion (EiM). For the past eight years I have been a Director of Business Administration and Bursar at Dulwich College (Singapore), overseeing most of the non-academic functions in the College including Human Resources, Finance, Procurement, Nursing, Operations and Facilities, ICT, Governance, Compliance and Quality Assurance. I am also the Designated Safeguarding Lead. It is this experience I feel is particularly valuable to my role on the board at Young Epilepsy and I look forward to working with the team to put these skills into practice and making a difference in the lives of young people.

 

In my free time, I enjoy reading or watching the TV. I also love spending time with my family back in the UK, especially my two grandchildren.

Ash Tailor

Trustee

Ash Tailor

Ash Tailor

Trustee

Ash Tailor

I joined the Young Epilepsy Board of Trustees in March 2024.

 

My passion for Young Epilepsy and the work they do comes from my desire for equal opportunities for all and ensuring the voices of children and young people with epilepsy are heard and their rights protected.

 

I have had an amazing career working with big name brands leading award-winning creative campaigns, launching new innovations and building new world-first tech-led experiences partnering with the likes of Ferrari, James Bond, Peppa Pig and Minecraft.

 

I have built brands in six of the seven continents across a range of sectors from retail, consumer goods and entertainment. With brand and marketing experience spanning some of the world’s biggest businesses from Coca-Cola, Vodafone, LEGOLAND to Unilever, I now also share my expertise by lecturing at the London Business School.

 

A qualified kickboxer and a keen cook, I love to relax with my family and friends and spend time in the Cotswolds.

Maria Rodrigues, Trustee for Young Epilepsy, May 2024

Trustee

Maria Rodrigues

Maria Rodrigues, Trustee for Young Epilepsy, May 2024

Trustee

Maria Rodrigues

I was appointed as a Trustee and Governor in May 2024. 


I am a serving Director of SEND at Academies Enterprise Trust with 57 schools, including 5 special schools. As an ambassador for SEND children over the last 20 years in both mainstream and special settings at school as well as trust leadership levels, I am absolutely passionate about inclusion and safeguarding and fully dedicated to improving children's lives chances.


Having worked with a significant number of children in special and mainstream settings with diagnosed epilepsy, I was attracted to Young Epilepsy because of their vision, purpose and values as well as their encompassing work with health, research and education whilst placing children and young people at the centre of everything they do by giving them a voice.

 

I enjoy travelling and reading. In my spare time I knit and crochet and I am now learning embroidery.

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Trustee

Tanya Moran

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Trustee

Tanya Moran

Biography pending.