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Launch day: sign our petition!
Sign our petition today to ensure every child with epilepsy has an Individual Healthcare Plan in school.
News and blogs
Featured
Young Epilepsy and Jay Bothroyd's Premier Football Experience
Inspired by the story of Cash, who faced exclusion from a football camp due to his epilepsy, former premiership footballer, Jay Bothroyd, joined us for a day of football skills and coaching at a fun football session in the Easter holidays.
Gene-STEPS: Genome Study improves lives and treatment for children with epilepsy
Gene-STEPS: Global genomic collaboration improves lives and treatment for children with epilepsy
What is 'Transition' and what can I expect?
What happens when you transition from paediatric to adult epilepsy care?
Transition: Questions to ask your epilepsy team
When it comes to transitioning from paediatric care to adult care, what do you need to know, and what should you ask?
Epilepsy12 report on children’s epilepsy care
The latest figures from the Royal College of Paediatrics and Child Health (RCPCH) show that epilepsy care for children is improving, but access to services still varies greatly.
My son's teacher accused him of daydreaming
A mum is raising awareness of the early signs of epilepsy after her five-year-old son Ruben was accused of 'daydreaming' in class - he now has around 15 absence seizures a day.
Katelinn and Lorna: Their journey through Katelinn’s diagnosis
Receiving a diagnosis of epilepsy can be frightening and leave young people and their families feeling overwhelmed and isolated. By connecting with other families at our in-person meet-ups, Katelinn and Lorna were able to find mutual support and a safe space to share the challenges they face.
Young Epilepsy launches Shout text service for young people in distress
We have launched a text service specifically aimed at young people living with epilepsy that are in distress. With a simple text message quoting the word ‘PURPLE’, users across the UK can access help and support from Shout’s trained volunteers at any time.
Young Epilepsy announced as official CarFest Charity Partner 2023
Young Epilepsy is an official charity partner of the country’s largest family fundraising festival – CarFest!
Young Epilepsy joins forces with Geek Retreat
We’re teaming up with Geek Retreat to create an inclusive gaming space for young people with epilepsy.
Thank you Fliss
A special shout out to the incredible Fliss who completed the 26 miles in 26 days challenge as part of our Purple Day celebrations. Fliss was our top fundraiser for the challenge, raising £1,200. Read her story here.