Research Report 2021

Young Epilepsy coordinates and funds research into the causes, treatments and impact of all aspects of childhood epilepsy. We want to secure the best outcome for everyone affected by the childhood epilepsies and we know the best way to do this is through research.

COVID19 has continued to disrupt all aspects of our lives, including how we have been able to conduct research and continue projects. Several projects have been delayed, whilst others were adapted to the restrictive and online environment. Congratulations to all who have been able to adapt and continue! During this period, we had 46 active projects spanning the clinical, educational, and social elements of paediatric epilepsy. We have published 99 peer-reviewed items of primary research with a further 3 chapters in books.

In September we saw the launch of the Young Epilepsy Diagnostic Imaging Suite, incorporating the OPM- MEG. This development, in collaboration with UCL
and Nottingham Universities, will enable detailed neurophysiological evaluation of a much younger and challenging population of children with epilepsy than before. Young Epilepsy exists to create a society where children and young people with epilepsy are enabled to thrive and fulfil their potential. A society in which their voices are respected, and their ambitions realised.

We were also excited to become part of the initial project of the IPCHiP consortium, Great Ormond Street Hospital and UCL Great Ormond Street Institute of Child Health (UK) working with Boston Children’s Hospital (US), Royal Children’s Hospital Melbourne and Murdoch Children’s Research Institute (Australia), and The Hospital for Sick Children (“Sick Kids”, Canada), aiming to determine the impact of early genetic diagnosis in children presenting with epilepsy in the first year of life.