I have epilepsy
If you have epilepsy or you've recently been diagnosed, you might be feeling upset, angry or depressed. We have lots of information to support you whilst you adjust.
Tell UK governments that children with epilepsy must be included fully in school life. Every child with epilepsy deserves to be safe and included at school.
If you have epilepsy or you've recently been diagnosed, you might be feeling upset, angry or depressed. We have lots of information to support you whilst you adjust.
Every single donation - no matter how big or small - helps us to support more children and young people with epilepsy.
Whether you have a child who has been recently diagnosed or if you have a school-aged child with epilepsy, there are many challenges that parents and carers can face.
I had to leave the school that I loved. It hurt me. I had to leave all my friends behind. I left because my teachers just didn't get my epilepsy. I have absence seizures which means I will lose my train of thought. I stare blankly for about 10 seconds, maybe five, depends.
Epilepsy can be one of the most frightening conditions a child can experience. Together we can help them live without fear.
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Today we launch our petition insisting the government takes action on school support for children with epilepsy.
New safety measures are now in place to reduce the risk of harms from the anti-seizure medicine valproate.
The UK is experiencing shortages in certain medications, many of which are prescribed for epilepsy. If you are worried about your supply of anti-seizure medications or are having difficulty getting hold of certain prescribed medications speak to your epilepsy team for more advice. Do not stop taking your medication or reduce dosage. Always speak to your doctor before making any changes to your meds.
Help us push the boundaries to ensure the voices of children and young people with epilepsy are heard, their voices respected and their ambitions realised.