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Text saying things not to say to someone with epilepsy

Things not to say to someone with epilepsy - Louise's review

BBC Three published the video ‘Things not to say to someone with epilepsy’. This has attracted a variety of reactions. Blogger Louise Glover has sent in her thoughts exclusively to Young Epilepsy.

As an epilepsy warrior, I've experienced many awkward social encounters with strangers, friends, colleagues, and even family. As an epilepsy advocate, I've spoken out about the many issues around the condition. BBC Three's video on "Things Not To Say To Someone With Epilepsy" highlighted just some of many questions and statements warriors hear every single day.

It's extremely hard hearing the same question or statement over again and empathising with the person in front of you. In my honest opinion, it's hard being asked if flashing lights effect me for the 100th time, and my lip still curls when I hear the words "epileptic" or "fit", but I have to remember that it's my chance to educate this person, and it's my chance to end this stigma attached to epilepsy and seizures.

As a fighter and advocate, none of these topics discussed in the video even surprised me, but as a viewer on the outside looking in, this is a great insight into the typical questions we're asked day to day. But let me tell you this - it doesn't end there! BBC Three's video simply goes to show how complex epilepsy is and how it affects everyone differently - not one person is the same. Continue to educate, raise awareness, and help make a change for those fighting a battle everyday. Epilepsy will never define us.


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Cyber EssentialsFundraising RegulatorYoung Epilepsy is the operating name of The National Centre for Young People with Epilepsy Charitable Trust.
Registered Charity number 311877 (England and Wales)

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