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Sainsbury’s Central Retail Division held a Fundraising Dinner for Young Epilepsy

On 28 February 2012, the Facilities Management team at Sainsbury’s Central Retail Division put on a fantastic fundraising event as part of the Charity of the Year partnership with Young Epilepsy. On the night, the team aimed to raise £5,000, however, thanks to the tremendous generosity of their guests and the wonderful auction prizes that were donated which included a helicopter ride around London and hospitality tickets to the Cheltenham Gold Cup, they smashed this target and raised £12,360 in total. This is an incredible result as it means they have also beaten the COTY target of £10,000 in just one evening!

Find out more about the fundraising dinner here.

Report suggests surgery is recommended as early intervention for some with epilepsy

Young Epilepsy Chief Executive David Ford said: “This new study adds to the mounting evidence that there are certain types of epilepsy which can respond positively to surgery.

For many children and young people living with epilepsy, surgery could leave them seizure free, but our evidence shows that not enough children and young people for whom surgery could make a big difference are getting access to this procedure.

That is why Young Epilepsy was instrumental in pushing for the Safe and Sustainable Paediatric Neurosurgery Review, the results of which we are eagerly awaiting.”

Is Twitter Reinforcing Negative Perceptions of Epilepsy?

Young Epilepsy is disgusted by the findings of a new report published by Elsevier revealing that people make negative and insensitive statements about epilepsy on Twitter. This exposes ignorance and a real need to educate people about the realities of living with epilepsy. As mentioned in the report, there would be outrage if people said these kinds of statements about people living with cancer.

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Sainsbury’s support makes a big difference

We’re delighted to announce that Sainsbury’s Central Retail Division has chosen Young Epilepsy as its charity of the year. Staff from the Retail Division, which is based in Holborn in central London, have already made a big difference by volunteering their time to help with gardening, decorating and other projects. The team is aiming to raise £10,000 for Young Epilepsy this year. Staff have already held a number of events, including shining shoes and selling sweets, and lots of other activities are planned for 2012.

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Ofsted reports that St Piers Sure Start Children’s Centre is GOOD

We’re delighted to announce that St Piers Sure Start Children’s Centre received a good overall rating following its first ever Ofsted inspection. The centre provides information, advice and support for parents in the local community with children under the age of 5, as well as a range of on-site, outreach and health services.

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Special education needs, support and advice from national charity

National charity Young Epilepsy is pleased to invite parents and carers from across England to a workshop about special educational needs funding.

The one-hour workshop, which is part of a half-day Open Day at the charity’s headquarters, will take place on Wednesday 14 March, and will be led by Deborah Hay, a barrister at Hardwicke and Imelda Brennan, solicitor at Langley Wellington LLP.

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Neurological nurse specialists; a vital resource under threat

Lancet Neurology article: Neurological nurse specialists - a vital resource under threat

Josh Coleman, Young Epilepsy Director of National Services said:

Young Epilepsy wholeheartedly supports the issues raised in Mario Christodoulou’s Lancet Neurology article which should ring alarm bells for those commissioning health services across the country. As a charity we are gravely concerned about any threat to the provision of services to those living with epilepsy and that includes provision of epilepsy nurses.

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World Champion Dai wins gold for Young Epilepsy

Young Epilepsy ambassador and World Champion 400 metre hurdler, Dai Greene, has got 2012 off to a running start by representing Young Epilepsy in an Olympics special of The Cube.

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Question Time!

Put your epilepsy questions to leading epilepsy expert

Do you have an epilepsy related question you would like to put to a leading expert?

In February, Young Epilepsy will be interviewing Professor Helen Cross, The Prince of Wales's Chair of Childhood Epilepsy and we want to know what questions you have.

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Call to action – submit a question to the Secretary of State for Education

Calling all Tweeters…On 31 January the Education Committee will be holding a Q&A session with Secretary of State for Education Michael Gove.

MPs on the Committee want to ensure their questions reflect the most pressing concerns in the world of education and want to hear what questions you would put to the Minister.

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Cyber EssentialsFundraising RegulatorYoung Epilepsy is the operating name of The National Centre for Young People with Epilepsy (NCYPE).
Registered Charity number 311877 (England and Wales)

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