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Dancing your way to a fortune

Young Epilepsy recently hosted two Zumba parties in East Grinstead and Hatfield to help raise funds and awareness for the charity’s flagship My Purple Pledge fundraising campaign.

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Taste the difference
Sainsbury’s staff host fundraising feast for Young Epilepsy

Staff at Sainsbury’s have raised over £12,000 for national charity, Young Epilepsy. All funds raised will help to make a difference to the 112,000 young people aged 25 and under living with epilepsy in the UK.

The Facilities Management Team at Sainsbury’s Central Retail Division invited company suppliers to a very special dinner and auction as part of the Charity of the Year partnership with Young Epilepsy.

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Mark Flanagan auctions off purple boots for Young Epilepsy

Young Epilepsy ambassador and St Helen’s rugby player, Mark Flanagan, has made his ‘My Purple Pledge’ and is auctioning the purple boots he wore in their win over Leeds on Sunday, 25 March 2012.

All money raised will go to Young Epilepsy’s My Purple Pledge campaign, which aims to turn purple pledges into pounds and help create better futures for young lives with epilepsy.

Bidding stands at £150. The auction will close at 5pm on 2 April with Mark personally presenting the boots to the winner.

To make a bid, email: This email address is being protected from spambots. You need JavaScript enabled to view it.

People with epilepsy scale Big Ben for the first time

For the first time in 150 years, people with epilepsy are now allowed to climb the Big Ben clock tower, due to a change in health and safety rules. To mark the lifting of the ban, a group of people with epilepsy and MPs will climb the tower at 9.15am on 26 March 2012. Organised by the Joint Epilepsy Council (JEC), a coalition of epilepsy organisations across the UK and Ireland, the climb coincides with Purple Day, the international day for epilepsy awareness.

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Epilepsy experts gather in East Grinstead for second Young Epilepsy Research Retreat

 

The Young Epilepsy Research Retreat serves as an annual get together for 70 researchers and collaborators from Young Epilepsy, UCL-Institute of Child Health, UCL-Institute of Neurology, Great Ormond Street Hospital and Dartmouth College, USA. The Retreat gives researchers the opportunity to discuss ongoing projects, completed projects and possible future directions of research.

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School Report

St Piers School students had a chance to discover what it’s like to be at the cutting edge of journalism thanks to a BBC-backed project

BBC school report logo, make the news in your school

Students have written news stories about the latest happenings at the school. They have also recorded short videos while interviewing both students and staff.

It has been a great experience for the students and they’ve done some really creative work. The School Report project has given them a taste of what it’s like to be a news reporter and some of them are really keen to work in the media in later life. We were fortunate to receive a visit from a BBC news producer and she really inspired the students. Who knows, maybe the next Huw Edwards or Sophie Raworth is at St Piers.

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Regional disparities in children’s epilepsy care

The differences in health services for children across the country have been laid bare for the first time today. The NHS Atlas of Variation in Healthcare for Children and Young People maps out the variation in healthcare for 25 different child health issues across England.

The Atlas shows that there is a four-fold variation in the emergency admission rate for children with epilepsy.

For more information on the Child Health Atlas, please go to rightcare.nhs.uk.

Sainsbury’s Central Retail Division held a Fundraising Dinner for Young Epilepsy

On 28 February 2012, the Facilities Management team at Sainsbury’s Central Retail Division put on a fantastic fundraising event as part of the Charity of the Year partnership with Young Epilepsy. On the night, the team aimed to raise £5,000, however, thanks to the tremendous generosity of their guests and the wonderful auction prizes that were donated which included a helicopter ride around London and hospitality tickets to the Cheltenham Gold Cup, they smashed this target and raised £12,360 in total. This is an incredible result as it means they have also beaten the COTY target of £10,000 in just one evening!

Find out more about the fundraising dinner here.

Report suggests surgery is recommended as early intervention for some with epilepsy

Young Epilepsy Chief Executive David Ford said: “This new study adds to the mounting evidence that there are certain types of epilepsy which can respond positively to surgery.

For many children and young people living with epilepsy, surgery could leave them seizure free, but our evidence shows that not enough children and young people for whom surgery could make a big difference are getting access to this procedure.

That is why Young Epilepsy was instrumental in pushing for the Safe and Sustainable Paediatric Neurosurgery Review, the results of which we are eagerly awaiting.”

Is Twitter Reinforcing Negative Perceptions of Epilepsy?

Young Epilepsy is disgusted by the findings of a new report published by Elsevier revealing that people make negative and insensitive statements about epilepsy on Twitter. This exposes ignorance and a real need to educate people about the realities of living with epilepsy. As mentioned in the report, there would be outrage if people said these kinds of statements about people living with cancer.

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Cyber EssentialsFundraising RegulatorYoung Epilepsy is the operating name of The National Centre for Young People with Epilepsy (NCYPE).
Registered Charity number 311877 (England and Wales)

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