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Young Epilepsy welcomes proposed improvements to healthcare

The Children and Young People’s Health Forum has today published a report recommending improvements to healthcare for young people.

The Forum has acknowledged there are excellent examples of childcare health provision, but has highlighted several areas where improvements could be made.

Young Epilepsy was one of the organisations that participated in the Forum, which was established to identify the health outcomes which matter most to children and young people and review how well these are met by the NHS and Public Health Outcomes Framework.

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Can you help us... Ask your MP to sign an Early Day Motion today!

Young Epilepsy is calling on its supporters to contact their MP and ask them to sign up to a new Early Day Motion (EDM).

EDMs are used by MPs to raise awareness of an issue and can lead to a formal debate in Parliament.

EDM 366 calls on the Government to do more to help young people reach their full academic potential. A number of MPs have already signed the EDM but Young Epilepsy hopes that more can be encouraged to do so and raise awareness of epilepsy within Parliament.

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Dai Greene wins an amazing £50,000 for Young Epilepsy

Young Epilepsy ambassador and World Champion hurdler Dai Greene tackled ITV1’s The Cube on Saturday evening – banking £50,000 to help us create better futures for young lives with epilepsy.

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Young Epilepsy student Manuel Harris runs with the Olympic Flame

Manuel carrying the olympic flame

17 year old Manuel Harris from Young Epilepsy’s St Piers School carried the Olympic Torch after being chosen as an official torchbearer. Manuel joined the procession to carry the torch through Seal in Kent at 12:22 on the 20 July 2012. He was nominated by his teacher, Oyla Scott.

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Young Epilepsy ambassador goes for gold on The Cube

Young Epilepsy ambassador and World Champion Dai Greene is going for gold this Saturday as he represents Young Epilepsy on ITV’s The Cube.

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Parliament calls for more to be done for children with epilepsy

Parliament has called for more help so young people reach their full academic potential while also praising Young Epilepsy’s campaigning and training work.

An Early Day Motion (EDM) tabled by Valerie Vaz MP, Vice Chair of the All Party Parliamentary Group on Epilepsy, states that more must be done to ensure the 60,000 children and young people in the education system reach their full potential. The EDM goes on to name Young Epilepsy and praises the charity’s work.

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Professionals invited to Complex Epilepsy Conference

Education, health and care professionals are invited to a one day conference aimed at anyone that works with families of children and young people with complex epilepsy.

The event, a collaboration between leading epilepsy charities Young Epilepsy and Matthew’s Friends, is ideal for anyone that wants to learn more about the condition and how it affects the child or young person and their family.

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Young Epilepsy shortlisted for Third Sector Excellence Award

Young Epilepsy is delighted to reveal that it has been shortlisted for a prestigious Third Sector Excellence Award in the Brand Development category.

The nomination follows the charity’s change of name and development into a UK-wide charity representing all 112,000 children and young people across the country living with epilepsy.

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Epilepsy blamed for ruined photographs – Young Epilepsy responds

A recent edition of the Daily Express newspaper contains a news story about a wedding photographer that refused to use a flash because he has photosensitive epilepsy.

Young Epilepsy cannot comment on the specifics of this case, but photosensitive epilepsy is a rare condition yet relatively well-known because it is often portrayed in television dramas.

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Free epilepsy training for schools and colleges in Greater London

A national charity is calling on school and college staff from across London to come forward and receive free training about epilepsy and how to manage the condition.

The course, run by experts from the charity Young Epilepsy, is for all staff working in education including; teachers, lecturers, teaching assistants, special needs co-ordinators and school nurses. The training is free of charge thanks to the generous support of the Big Lottery Fund.

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Cyber EssentialsFundraising RegulatorYoung Epilepsy is the operating name of The National Centre for Young People with Epilepsy (NCYPE).
Registered Charity number 311877 (England and Wales)

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