The children and young people's epilepsy charity
A- A A+
Donate Shop Main Number: 01342 832243 (Mon-Fri, 8:30am-5pm)
Helpline: 01342 831342 (Mon-Fri, 9am-3pm)

Medical records

NI Government to examine case for epilepsy database

The Northern Ireland Health Minister is to examine the case for establishing an epilepsy database to record patient care. The announcement came in response to an Assembly debate led by members of the all-party group on epilepsy.

Chair of the all-party group, George Robinson MLA, said:

Most debates are littered with impressive facts and figures about service provision, patient numbers and even mortality rates. However, those facts cannot be used today because they do not exist: no definitive information is gathered on a Northern Ireland-wide basis about the number of people who live with epilepsy, misdiagnosis, or the incidence of sudden, unexpected death from epilepsy. We need a database; we need facts in order to accurately deliver services to people with epilepsy.

The Minister, Michelle O’Neill, acknowledged that better information and analysis could improve patient care. Government officials have been asked to assess what information is currently being recorded and consider the merits of establishing a distinct database for epilepsy.

Assembly Members from across the parties spoke in support of the proposal, which also called for more people to have access to an epilepsy specialist nurse. The debate follows a meeting earlier this year in Westminster, where clinicians, parliamentarians and members of the public discussed the benefits of establishing a UK-wide epilepsy registry.

If you need any help or support, please contact our helpline on 01342 831342 or email This email address is being protected from spambots. You need JavaScript enabled to view it.

Read the debate in the NI Assembly

Read about the meeting in the UK Parliament (March 2016)

Share with friends

Cyber EssentialsFundraising RegulatorYoung Epilepsy is the operating name of The National Centre for Young People with Epilepsy (NCYPE).
Registered Charity number 311877 (England and Wales)

We use cookies to improve our website and your experience when using it. Cookies used for the essential operation of the site have already been set. To find out more about the cookies we use and how to delete them, see our Privacy Policy.

I accept cookies from this site
EU Cookie Directive plugin by