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New family support package

This new and vibrant handbook is the result of feedback from parents and professionals – we hope it will make a real difference and give a boost to families living with epilepsy. The clearly written 96 page looseleaf A5 handbook is designed to help parents find their way through the maze of information and services.

A step-by-step approach means that parents and older children can dip in and out of the handbook, so that the whole family can start to understand epilepsy and how to get the most of out of life once someone is diagnosed.

The handbook, available free to parents, includes:

  • a simple guide to epilepsy and its diagnosis and treatment
  • tips for dealing with school
  • holidays and travel
  • living with epilepsy and the emotional issues
  • epilepsy and teenagers
  • a guide to useful websites, forums, books and DVDs
  • sample seizure and health record charts

Parents of children with epilepsy tested out the handbook and it received an overwhelming thumbs up.

Caroline, whose 9 year old daughter was diagnosed with epilepsy at age 7 said: I feel that you are putting the real live parent in focus, there are so many different aspects to managing this condition and I feel all of them are covered here. There is something new that jumps out at me each time I look. She adds I like the fact that the sections give the information in a way that suits the time poor parent!

The handbook, along with details of a family’s conference and the seizure diaries, is available from the Childhood Epilepsy Information Service on This email address is being protected from spambots. You need JavaScript enabled to view it. or telephone 01342 831342. Sample Parent’s Handbook pages can be viewed by clicking on the links below.

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Cyber EssentialsFundraising RegulatorYoung Epilepsy is the operating name of The National Centre for Young People with Epilepsy (NCYPE).
Registered Charity number 311877 (England and Wales)

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