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RCPCH Epilepsy passport

Introducing the Epilepsy Passport

Today, our chums at the Royal College of Paediatrics and Child Health are launching their innovative new tool which is set to improve communication between professionals and keep children and young people out of hospital. It’s called, the Epilepsy Passport.

What is the Epilepsy Passport?

The Epilepsy Passport is a mini-booklet with important and up-to-date information about a child or young person’s epilepsy.

Holding a Passport will help communication between a young person or child, their family and the other doctors and nurses that are seen. It can also be used if the child or young person ever needs to go to the Accident and Emergency (A&E) department.

Young people may also find it useful in other circumstances. This could include sharing the Passport with their school, college or university.

In fact, the Epilepsy Passport can help to share the information with anybody that feel needs to know it.

How is the Passport made?

An epilepsy doctor or specialist nurse will use an online form, in which they will fill in health details about the child or young person, along with them and their family. At the end, a Passport is made and this will be printed out on paper.

Who will carry the Passport?

The Passport can be folded to wallet-size, and kept in a small plastic wallet so that it can be carried at all times.

The Passport can be shared with anyone. This could include doctors in the A&E department, with teachers if going away on school trips and friends on sleepovers. A doctor or epilepsy specialist nurse will also keep a copy of the Passport in your hospital notes.

When should the Passport be updated, and how?

The Passport should be updated when anything to do with your epilepsy changes. This could include a change in your anti-epileptic medicines.

Find out more about the Epilepsy Passport

Young Epilepsy Clinical Leadership fellow, Dr Amit Bali, who is working with us to improve epilepsy services for children and young people, is Deputy Clinical Lead for the Epilepsy Passport:

The Epilepsy Passport is a simple yet incredibly meaningful tool which will help improve communication around a young person’s epilepsy. It is intended to provide clarity for young people and their families, and to facilitate communication with and between clinical teams, especially in emergencies. However, by virtue of being held by the young person themselves, it can be shared with whomever they like – the most obvious example being schools and colleges
Dr Amit Bali, Young Epilepsy Clinical Leadership fellow

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Cyber EssentialsFundraising RegulatorYoung Epilepsy is the operating name of The National Centre for Young People with Epilepsy (NCYPE).
Registered Charity number 311877 (England and Wales)

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