Girl with epilepsy shares her 18th birthday wish!
A teenager who has epilepsy and autism is turning 18 and all she wants for her birthday is lots of cards reports Wales Online.
Holly lives with epilepsy, autism and global developmental delay and lives in Nantymoel, Wales. When asked what she would like for her birthday, Holly asked for birthday cards and a trip to Castle Bingo in Bridgend with her mum and sister.
Mum Claire Benbow, 44, said:
If she just had 10 more cards from people outside the family she would be happy. But she already has 20 cards on the mantlepiece. It's amazing. We didn't expect to have this kind of response because we haven't done anything like this before. Basically she hasn't got many friends in school, so we can't do a party for her. The only thing other than that is to spend the day opening birthday cards. She likes to see her name and she likes us to read out who the cards are from.
She has many different types of epilepsy and was treated at Great Ormond Street Hospital and also had a vagus nerve stimulator implanted to try to control the fits but it hasn't made any difference whatsoever. On a good day we can have about five to six fits and on a bad day we can have anything from 15 to 20.
People say to me 'How do you manage?' but we don't know any different. We are always by her side. We put her in the recovery position and because she goes blue we have to give her oxygen. If she fits for longer than five minutes we have to give her emergency medication and then if it goes on we have to phone for assistance. She also has to use a wheelchair when she goes out because if she walks far she gets very very tired and that brings on fits. But other than that she gets on with her day and is just fantastic.
Young Epilepsy wishes Holly a very happy birthday for the 19 December and hope she receives our card soon. If you would like to send a birthday card, please click the link below.