Epilepsy support group brings families in need together
Young Epilepsy connect worker, Jeanenne blogs about her perfect picnic with her support group at Hylands Park in Chelmsford.
Here’s what she had to say:
The picnic in the park was a great success, with six families attending, with twenty-five people in total. The event was held at Hylands Park in Chelmsford, which has good facilities for families. Initially the day started with rain, which was a worry and people contacted to ask if it was going to be cancelled. With true grit we carried on, a little rain would not put us off.
We had six mums, and one dad come along, with six children who have epilepsy. Another epilepsy charity was also in attendance, who kindly brought a good selection of children’s games. We also had the pleasure of Epilepsy Specialist Nurse, Donna Shepherd, who has been a great supporter of Young Epilepsy’s Connect Project and has referred many families.
The atmosphere on the day was one of great fun and it was brilliant to see the children and young people making friends and playing together. The children and young people also spent time talking about epilepsy and how it affects their day-to-day lives. As well as mums, dad and grandparents chatting together and discussing epilepsy, some parents even swapped phone numbers so they could meet up again with the children. Parents also made use of having other professionals there to discuss epilepsy, and discuss subjects such as medication.
The parents at the end said they would like to do this kind of event again and have found meeting other families very helpful.Looking for epilepsy support in your area? We currently run support groups for aged 0-25 years olds who are living with epilepsy in Kent, Essex and Blackpool/Preston, providing emotional and social support for young people with epilepsy and their families.