Better futures for young lives with epilepsy and associated conditions
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Neurological, cognitive and neuroimaging outcomes after childhood status epilepticus

Chronic paediatric diseases, including epilepsy, have been strongly associated with increased stress levels in parents and carers, which have in turn been shown to negatively affect paediatric outcomes.

This study seeks to delineate the levels of stress and its associated cofactors occurring at time of diagnosis with a view to improving patient and family outlooks.


To determine prevalence of epilepsy, motor and cognitive problems within 10 years after an episode of convulsive status epilepticus (CSE) in childhood and investigate the predictors of poor outcomes.

Outline plan

Children who had prolonged seizures 5-10 years ago are invited to have clinical neurological evaluation, cognitive assessment and brain MRI. The data will help to identify clinical and sociodemographic factors present at the time of CSE that were associated with having active epilepsy, motor impairment and cognitive impairment.


Data is analysis is underway and draft papers are in progress for publication. Results suggest that children with no prior neurological impairments have a good outcome, and those with prior neurological impairments and/or epilepsy have poor neurological outcomes.


Suresh Pujar, Marina Martinos, Kling Chong, Michelle De Haan, Brian Neville, Chris Clark, Richard Chin, Rod Scott.

Cyber EssentialsFundraising RegulatorYoung Epilepsy is the operating name of The National Centre for Young People with Epilepsy (NCYPE).
Registered Charity number 311877 (England and Wales)

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