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Cardiac Arrhythmias in Dravet Syndrome (CADS)

Aim

An international study to assess the prevalence of cardiac arrhythmias in patients with Dravet Syndrome and to compare the prevalence of cardiac arrhythmias between these patients and those with other types of epilepsy.

What this means

This is an international study, led by the Stichting Epilepsie Instellingen Nederland (SEIN) and conducted in the Netherlands, Germany and the UK. We know that people with Dravet Syndrome have a higher risk of Sudden Unexpected Death in Epilepsy (SUDEP) and we want to understand if this is connected to heart problems. We hope to evidence the need for treatment pathways to include both cardiac and neurological monitoring as standard care in Dravet Syndrome.

Update

We have ethical approval and are currently opening GOSH as a recruitment site. We hope to have data collection complete by summer 2018.

Investigators

Roland Thijs, Sharon Shmuely, Sanjay Sisodiya, Helen Cross

Cyber EssentialsFundraising RegulatorYoung Epilepsy is the operating name of The National Centre for Young People with Epilepsy (NCYPE).
Registered Charity number 311877 (England and Wales)

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