Better futures for young lives with epilepsy and associated conditions
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Useful documents

With recent introduction of new statutory regulation including the Children and Families Act, schools and staff must provide better support to children with epilepsy and other long term medical conditions.

We have produced a number of useful documents that teachers and support staff can use to monitor and support the pupils they teach.

Assessment of Behaviour and Learning in Epilepsy (ABLE)

The ABLE tool helps schools meet their obligations under the Children and Families Act. It has been developed to be used by both teachers and parents.

This questionnaire helps assess a young person’s needs to ensure that they receive the right holistic support. Please ensure that teachers and parents share the results from their completed forms.

ABLE has been developed and trialled with parents and teachers, and is now under-going a formal validation process.

Individual healthcare plan

To capture detailed information about a child or young person with epilepsy, including seizure type, treatment, how to administer medication and emergency contact.

Witnessing a seizure form

To provide information about the seizure which may allow future planning for the child. This is useful for medical professionals and parents if the child is presenting in different ways.

Record of emergency medication

This document is designed so you can keep a record in the event of your child requiring emergency medication.

Seizure record chart

This chart records the frequency and types of any seizures. It can identify patterns in seizure activity which can help to give doctors a better idea of how best to treat your child.

School policy

Developing a school policy ensures best practice in managing epilepsy at your school and that improvements are sustainable in the longer term. Feedback from Ofsted is that they would place a value on seeing such work in any schools' Self Evaluation Framework (SEF).

Cyber EssentialsFundraising RegulatorYoung Epilepsy is the operating name of The National Centre for Young People with Epilepsy (NCYPE).
Registered Charity number 311877 (England and Wales)

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