Childhood epilepsy: A Guide for Parents | At diagnosis | Help and support for parents and carers | For parents and carers

Childhood epilepsy: A Guide for Parents

Being a parent or carer of a child with epilepsy can be distressing. One of the biggest challenges you can face is the fear of the unknown, so having some knowledge and information about the condition will help you to feel more confident.

You can download a copy of 'Childhood epilepsy: A guide for parents' below.

This guide has been written by experts from Young Epilepsy, Great Ormond Street Hospital and UCL Great Ormond Street Institute of Child Health.

It would also not have been possible without the help of a great many parents who have told us what they would have liked to have known, when their child was first diagnosed.

This guide has been rated 'Highly Commended' by the British Medical Association (BMA) at their Patient Information Awards 2017.

A reviewer, on behalf of the judging panel for the Awards, said:

I think this is a very good resource. It is well-produced, attractive, and easy-to-read and contains a lot of detailed but relevant information. It provides an excellent summary of the key science behind the condition, its diagnosis and management. I think families with children with epilepsy would find this more informative than several more broad guides and resources out there.

Download your digital copy

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Did you know we have another guide, specifically for parents of infants and young children with epilepsy? You can take a look here.
We also have downloadable copies of the forms mentioned in our parent guides. 



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