Enabling children and young people with epilepsy and related conditions to thrive and reach their ambitions

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Families, Feelings and Finding Freedom

Here at Young Epilepsy we’re always working to give children and young people with epilepsy the emotional and practical help and resources they need to live their life to the fullest.

A big part of this is, of course, helping the people who help them the most: their family. As National Epilepsy Week draws to a close, we’re focussing on helping young people to feel safe.

We know from the conversations we have with young people, and the questions we’re answering from their parents, that when a child is diagnosed with epilepsy there are many repercussions; like dropping a pebble into a pond, the effects of the diagnosis can affect everyone differently.

Parents and carers understandably want to try and do all they can to keep their child as safe as possible, whilst young people often feel like they don’t want to allow their condition to have a negative impact on all the freedom they’ve enjoyed.

Knowing that your child has a potentially life-threatening condition obviously has a huge impact on day-to-day life, and can bring about incredible amounts of stress and anxiety. The concerns of a parent are often very different to that of the young person, so each requires their own sources of support and information.

Whilst our helpline is there for anyone who is living with a diagnosis of epilepsy, as part of National Epilepsy Week today we’re hosting a very special event specifically for the parents and carers of children and young people with epilepsy.

We’ll be helping them to learn how to ensure their child is getting the best support at school, discover practical tips for preparing for clinical appointments, and get an understanding of how the health system works.

There will also be insights from medical professionals, and from young people themselves.

If you’d like help to understand more about epilepsy, whether you’re a young person or a parent, our helpline is available to you. Call 01342 831342 (Mon-Fri, 9am-3pm).

Cyber EssentialsFundraising RegulatorYoung Epilepsy is the operating name of The National Centre for Young People with Epilepsy (NCYPE).
Registered Charity number 311877 (England and Wales)

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