Information about COVID-19 (coronavirus)
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Information about COVID-19 (coronavirus)

It's understandable to be concerned about COVID-19 (coronavirus). We've created this page to help keep you up-to-date with the most recent information. We hope you find it useful and it answers some of your questions.

You can also visit The Channel, our online information service, and The Hub, our online community for young people with epilepsy.

What to expect when you visit our Lingfield site

Download the Young Epilepsy COVID Risk Assessment

 

Does having epilepsy put you at increased risk from coronavirus?

There is no evidence that having epilepsy increases the risk of catching the virus or having a more severe case of the illness. The majority of children and young people will get mild symptoms which will pass after a few days.

However, illness can be a seizure trigger in many children and young people with epilepsy – so it’s important to take care.  Follow the latest social distancing guidance and get plenty of rest and water if you or your child does get ill. 

If you have any questions or concerns you should check with your doctor or epilepsy nurse.

The Government is regularly updating its guidance, so please check here for further information: www.gov.uk/coronavirus 

 

Do people with epilepsy have priority to get the COVID-19 vaccine?

The Joint Committee on Vaccination and Immunisation (JCVI) has issued advice on who should have priority to get the COVID-19 vaccine in the UK. If you have any concerns, please speak to your doctor.

People aged 16 and over

Everyone aged 16 and over is eligible for two doses of the COVID-19 vaccination, as well as a booster vaccination. You can book and manage appointments on the NHS website.

Children aged 12 to 15 with epilepsy

All children aged 12 to 15 are being offered two doses of the COVID-19 vaccination. You can find out more information about the vaccination for 12 to 15 year-olds on the NHS website.

Children aged 12 to 15 with epilepsy are also eligible for a booster vaccination. This can be accessed at walk-in vaccination sites, or through your GP surgery.

Children aged 5 to 11 with epilepsy

Children aged 5 to 11 with epilepsy are eligible to receive two smaller doses of the COVID-19 vaccination. Your GP or other NHS services will contact parents of eligible children. If you have any questions or concerns, please speak to your child's doctor.

 

What effect will the vaccine have on my epilepsy?

There is currently no evidence that people with epilepsy are at higher risk of experiencing side effects from the COVID-19 vaccine than anyone else. The ILAE (International League Against Epilepsy) have issued an article stating that there is no greater risk associated with epilepsy and also what you need to be aware of regarding the vaccine. The full article can be found here: COVID-19 vaccines and people with epilepsy

 

Do epilepsy medicines stop the immune system working well?

Most anti-seizure medication does not affect your body’s immune system.

If you do take medication that affects the immune system (such as everolimus), please speak to your doctor before your vaccination appointment.

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Registered Charity number 311877 (England and Wales)

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