Information and advice
Young Epilepsy’s information service aims to provide families and professionals with information, education and training about epilepsy in young people.
Epilepsy may affect a child’s ability to learn and so schools need training about epilepsy to provide the best support. Young Epilepsy has an epilepsy education programme for schools which delivers lessons to pupils in all key stages as well as training for staff.
Parents of a child with epilepsy often feel isolated as it can be difficult for them to meet other families in the same situation. Support from local healthcare services can be patchy and it may be difficult for parents and young people to find the information and understanding they need.
Young Epilepsy’s information service is able to provide information and support through its helpline which is available from 9am-1pm, Monday – Friday. A variety of resources are available including handbooks and seizure diaries.
Young Epilepsy also hosts an annual event for parents, families and young people to meet and learn about epilepsy. Separate workshops are run for teenagers to give them the opportunity to discuss the issues that matter most to them.
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