Working with partners
As well as spearheading our own Champions Campaign to improve education and health services for children and young people with epilepsy, Young Epilepsy works with other charities and organisations to press for change.
The Epilepsy 12 audit
Young Epilepsy is helping to publicise the national Epilepsy 12
audit about the treatment of children with epilepsy – click here for more details and follow the link to promotional materials
for the latest Epilepsy 12 newsletter.
The Joint Epilepsy Council
We belong to the Joint Epilepsy Council an umbrella organisation for 26 epilepsy charities, pressing the government, parliamentarians and key policymakers for better epilepsy services.
The Epilepsy and Related Conditions (Education and Health Services) Bill 2010-11 - help us press the Prime Minister for epilepsy support
A Ten Minute Rule Bill to require the Government to produce a proper epilepsy plan for England and Wales has its second reading in the House of Commons on 4 March 2012. Please join our campaign with the Joint Epilepsy Council. We are pressing the Government to give the Bill a chance to become law by allocating proper Parliamentary discussion time for it. You can write direct to Prime Minister David Cameron to make your point.
Use this letter to write to Prime Minster David Cameron
Simply click here to download the Ten Minute Rule Bill letter, print off, add your own address, sign and post to Rt. Hon. David Cameron MP, Prime Minister, 10 Downing Street, Westminster, LONDON SW1A 2AA.
The Health in school alliance
Young Epilepsy is also part of this alliance of over 30 charities campaigning for pupils with long term health conditions to be better accommodated at school.
To view a statement on this work and see which other organisations are part of the alliance please see the Alliance Policy Briefing document:
Download Alliance Policy Briefing September 2010 (PDF)
The Tandridge Confederation
The Tandridge Confederation in Surrey were the first organisation to work closely with us in establishing the Champions for Childhood Epilepsy Campaign education pilot. Their enthusiasm and commitment allowed Young Epilepsy to develop and test a truly effective, affordable and practical model of best practice that can improve outcomes for students with epilepsy and be followed by schools across the country. The Champions Campaign Education Pilot Report sets out this important partnership work in more detail.
The alliance supported the Private Members’ Bill put forward by Jim Cunningham MP in May 2009.
Working with professional associations and trades unions
National Union of Teachers (NUT)
The NUT has helped to promote our campaign work with a two page article in the July 2010 edition of The Teacher magazine (pages 40-41).
Download the relevant pages from The Teacher Magazine July 2010(PDF).
We also worked with the NUT to deliver a very successful study day on a More than a spoonful of sugar
in November 2010.
National Association of Head Teachers (NAHT)
The NAHT has supported our campaign with a web page promoting our work to its members.
The Children's Epilepsy Workstream in Trent is a 'network' of people in the Trent region with interests and responsibilities for children and young people with epilepsies. The group contains link professionals
from health services across the region.
The aim of the Workstream is to work together to further develop and resource services for children and young people with epilepsies.
We are currently working with CEWT to develop a range of practical resources to help improve services to children with epilepsy and their families.
Join us online: