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Young Epilepsy CEO calls for better medical aid in schools

In November last year, Nasar Ahmed died at the age of 14 after having a fatal allergic reaction in his school in Hackney. The recent inquest found that his care plan was missing crucial information and that school staff often didn’t check the content of pupils’ healthcare plans.

Young Epilepsy is leading a campaign on epilepsy support at school. The campaign aims to ensure that every school has the right support in place for children with health conditions and that every child with epilepsy has an individual healthcare plan. We are calling for school inspections to include a routine check on medical support being provided.

Hearing the news of the coroner’s report, Young Epilepsy Chief Executive, Carol Long wrote to national newspapers highlighting the importance of school support for children with health conditions, including emergency care for children with epilepsy. Her letter has been published in the Evening Standard and the Daily Telegraph.

You can see her letter in the Daily Telegraph below.

Carol Long, Chief executive at Young Epilepsy said:

SIR – Your report on the inquest into the death of 14-year-old Nasar Ahmed, who suffered a severe allergic reaction, highlights the need for schools to have support in place for children with health conditions. The coroner found that his care plan lacked crucial information and that school staff were often unfamiliar with children’s health-care information.

This week is National Epilepsy Week, and Young Epilepsy is calling for medical support to be checked in school inspections. A recent survey found that fewer than 12 per cent of state schools in England had a medical conditions policy that complied with the requirements of the Children and Families Act 2014.

On average, epilepsy affects one child in every primary school and five in every secondary school. It is more common in childhood than diabetes and is often misunderstood. As well as having a significant impact on learning and behaviour, epilepsy can require emergency intervention. It is crucial that staff understand when it is necessary to give medication or to call an ambulance. Without the right intervention, children are at risk of brain injury or even death.

More information on our School Support Survey

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Cyber EssentialsFundraising RegulatorYoung Epilepsy is the operating name of The National Centre for Young People with Epilepsy (NCYPE).
Registered Charity number 311877 (England and Wales)

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