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e-voice December 2011
Welcome to the latest issue of e-Voice
You may have noticed things look a little different this time around... that's because the National Centre for Young People with Epilepsy recently became Young Epilepsy!
We have packed the December issue with all our latest news, including the new name, Young Epilepsy's meeting with the Prime Minister, plus our latest research study, and much more. We hope you enjoy the issue.
We'll be back in the new year, but in the meantime you can keep up to date with all our latest news by following us on Facebook and Twitter.
Enjoy the holidays!
Breaking News
NCYPE becomes Young Epilepsy
On 1 November 2011 the National Centre for Young People with Epilepsy (NCYPE) launched its new name, Young Epilepsy. The new name reflects the charity's change into a national charity and the only UK wide charity exclusively supporting the 112,000 children and young people (aged) 25 and under with epilepsy and their families.
Young Epilepsy Ambassador Dai Green at the launch of our new name
More on Dai coming up later!
David Cameron pledges to help Young Epilepsy
The Prime Minister met with Young Epilepsy's Professor Helen Cross and Karen Deacon, as well as Valerie Vaz MP for Walsall South and Laura Sandys MP for South Thanet, to discuss the shortcomings in health and education services for people with epilepsy. As a result, he has pledged to raise the profile of epilepsy.
Research shows children with epilepsy are getting a poor deal from the education system
Youngsters with epilepsy are getting a poor deal from the education system, new research from Young Epilepsy has revealed.
The research, carried out with parents that have children in school with epilepsy, raises questions over the support available to families living with the condition.
Festive News
Christmas Appeal
Young Epilepsy has launched its reach for the stars
Christmas campaign. With the help of Britain's Got Talent dance sensation, Stavros Flatley, we are inviting you to purchase a special star designed by students from our school and college. A minimum donation of £6 per star will help us enrich the lives of the children and young people at the heart of the campus.
Christmas cards and Prize Draw
If you are planning to send Christmas cards this year then look no further. We have put together an exciting new collection of designs for 2011, with something to suit the tastes of everyone. As well as our new selection of cards, we are very pleased to be holding our annual Christmas Prize Draw.
Other News and Events
My Purple Pledge 2012
Following our launch of My Purple Pledge in 2011 we're now gearing up to turn the country purple in March 2012. Children's ISA will be the new Purple Pledge sponsor - Mark Albinson, Director of the brand new Children's ISA said, We are delighted to be supporting the work of Young Epilepsy. We believe My Purple Pledge 2012 will be a huge success and we are looking forward to getting involved and helping to raise as much money as possible.
In addition to this Easylink UK will be My Purple Pledge's first commercial partner.
Children in Need
Wasn't Children in Need great this year? Students at our special residential school and college got into the swing of things - fundraising for other children. Here's a picture of Elliot - a student at our school - read about Elliot's progress at Young Epilepsy
Vote for Dai!
Young Epilepsy ambassador and 2010 Commonwealth Games gold medal winner, Dai Greene, has been shortlisted for the BBC Sports and BBC Cymru/Wales Sports Personality of the Year Awards. Having been diagnosed with epilepsy during his teens, Dai is a terrific role model for all young people. Winning one of these prestigious accolades could really put Dai, and epilepsy, in the spotlight. Vote for Dai!
Events Calender
- 16 Dec The Horley Singers - Christmas songs
- 9 Jan Epilepsy Emergency Medication Course - Islington
- 10 Jan Epilepsy Emergency Medication Course - Redbridge
- 11 Jan Epilepsy Emergency Medication Course - Hammersmith and Fulham
- 18 Jan Open Day - Young Epilepsy, Lingfield
- 27 Jan Hartsfield Manor Burns Night
- 7 Feb Epilepsy Emergency Medication Course - Young Epilepsy, Lingfield
- 7 Feb Epilepsy Emergency Medication Course - Chelmsford
- 8 Feb Epilepsy Emergency Medication Course - Ipswich
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