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Tell us your story

Share your experiences of epilepsy and help us change lives

Every person affected by epilepsy has a unique story to tell. We want to hear from you.

Sharing individual stories of how epilepsy impacts your life is incredibly powerful and provides a great opportunity to raise awareness, challenge perceptions, and influence our work. This makes sure everything we do continues to help the 112,000 young people with epilepsy fulfil their potential.

Anyone who shares their story will be contacted by someone from our media team (usually within 14 days). The team will discuss the information you have provided, and may ask you for a few more details. They will then talk you through the possible ways we might be able to use your information, for example on our website, in our publications, or in the press. NB no information you provide will ever be used without your permission.

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You can opt-out at any time by sending an email to communications@youngepilepsy.org.uk or by calling 01342 832243 and asking for the communications team. We will not sell or pass on your information to any other organisation/person.