Better futures for young lives with epilepsy and associated conditions

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Children and Families Act

Under the Children and Families Act 2014, schools in England are required to have a policy on supporting pupils with medical conditions such as epilepsy. The Government has published statutory guidance which sets out what schools should be doing to support these young people.

This means that all pupils with epilepsy should have an Individual Healthcare Plan (IHP) and that staff in schools should be appropriately trained to meet their needs. Schools need to take into account how a young person’s condition might affect their learning.

Download our template IHP and other useful resources

The Children and Families Act also sets out the new framework of support for children with special educational needs or disabilities (SEND) in England:

  • Statements of Special Educational Needs and Learning Disability Assessments (LDAs) are being replaced with Education, Health and Care Plans (EHCPs)The EHCPs can continue to support young people up to the age of 25 years if the local authority consider that the young person needs more time to complete their education or training.
  • School Action and School Action Plus has been replaced by SEN Support – schools will continue to identify children who need additional support and parents will be involved in planning how to meet these needs. Experts from outside the school will still be used when necessary for specialist assessments. There is a greater emphasis on quality teaching.
  • All local authorities are required to published their ‘local offer’ – a directory of what is available for families in their area. It should include what you can expect from local providers such as schools and colleges. It should also include information about how services are allocated, how to access specialist support and how to make complaints.
  • Information and advice about SEND must be made available by local authorities.

The Government has published a guide to the SEND system for parents and carers.

Use our ABLE tool to identify what support your child might need

Young Epilepsy research shows that 95% of children with epilepsy experience a significant difficulty with learning or behaviour.

The Assessment of Behaviour and Learning in Epilepsy (ABLE) tool is for parents and teachers.

This straightforward questionnaire helps assess a young persons needs to ensure that they receive the right holistic support. Please ensure that both you and your child's teacher complete the relevant forms and that you share your results.

ABLE has been developed and trialled with parents and teachers, and is now under-going a formal validation process.

Helpline

If you would like more information or would like to talk confidentially with someone, contact us on 01342 831342 or email This email address is being protected from spambots. You need JavaScript enabled to view it..

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Cyber EssentialsFundraising RegulatorYoung Epilepsy is the operating name of The National Centre for Young People with Epilepsy (NCYPE).
Registered Charity number 311877 (England and Wales)

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