Better futures for young lives with epilepsy and associated conditions

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Contact us: 01342 832243
Helpline: 01342 831342
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Talking to your child

It is important that you find out as much as you can about your child’s condition, so you will be able to answer any questions they may have. The whole situation can be confusing and worrying, as they now have to take medicine every day and may see their parents upset or worried, which in turn can make them anxious.

Giving them the details

It is important to explain to them as much as possible about their epilepsy. A full and factual explanation will hopefully help to ease their worries and fears.

Older children will need to know exactly what is happening and why, and should be given the chance to ask plenty of questions, particularly regarding tests and medication.

Remember to explain what is happening and why, and encourage them to ask questions. Reassure them there’s nothing for them to be frightened about and give the child time to take in all the information.

Below are some of the common questions your child may ask about their epilepsy:

  • What caused the epilepsy?
  • Did I do something wrong?
  • Why does it happen?
  • Will it go away?
  • How long will I have to take the medicine?
  • Can I still do things that my friends do?

Seizure diaries and magazines

We provide free resources including seizure diaries and magazines for children and young people which may help to explain more about epilepsy to your child.

Learn more about our seizure diaries

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Text PURP11 (plus the amount) to 70070 to donate

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Star Fact!

Misdiagnosis rates in the United Kingdom are between 20–31%.

Cyber EssentialsFundraising RegulatorYoung Epilepsy is the operating name of The National Centre for Young People with Epilepsy (NCYPE).
Registered Charity number 311877 (England and Wales)

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