Better futures for young lives with epilepsy and associated conditions

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School Support Survey

School Support Survey

If your child has epilepsy, their school needs to make sure they have the support they need to be safe, included and achieve their potential.

Since 2014, all state schools in England have been legally required to have a policy on supporting children with medical conditions such as epilepsy. The Government has published guidance which explains what schools should be doing to support these young people.

This means that all children with epilepsy should have an Individual Healthcare Plan (IHP) and school staff should be trained to meet their needs. Schools also need to take into account how a young person’s condition might affect their learning.

A survey by the Health Conditions in Schools Alliance (of which Young Epilepsy is a member), found that less than 12% of state schools in England could show that they had a medical conditions policy that complied with Government guidance.

Carol Long, CEO at Young Epilepsy said:

We know that epilepsy can have a profound impact on young people’s lives. We want to find out whether schools are providing the right support to maximise the opportunities for children and young people to get the best from their education. By taking part in our survey, you will be supporting Young Epilepsy in making the first step in campaigning for better support for young people with epilepsy in schools across England.

Young Epilepsy wants to find out about your experiences of epilepsy support at school so that we can make sure that all children with epilepsy get the support they need.

Thank you to everyone that took part in our school support survey. We are currently analysing the responses and will publish the results on our website. We will use the findings to help campaign for better epilepsy support at school. If you would like to be kept up-to-date with Young Epilepsy’s activities and developments, please email This email address is being protected from spambots. You need JavaScript enabled to view it.

If you would like to speak to someone about epilepsy support at school, please contact our helpline on 01342 831342 or This email address is being protected from spambots. You need JavaScript enabled to view it.

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Cyber EssentialsFundraising RegulatorYoung Epilepsy is the operating name of The National Centre for Young People with Epilepsy (NCYPE).
Registered Charity number 311877 (England and Wales)

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