Books For Parents, Carers and Teachers
Epilepsy - A Parent’s Handbook
Provided free to parents
Available from Young Epilepsy
This handbook was written specifically for parents of children who have been newly diagnosed with epilepsy. It gives parents useful information that will help them understand, and deal with, this condition. The handbook has been written in a style that is easy to read and, as well as the relevant information needed, it directs the reader to sources where further information may be obtained. There is a section containing useful forms (that may be photocopied) so that parents can document the necessary information (e.g. drug regimes, seizure charts, etc.) which will be of value to the child’s treatment plan.
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Epilepsy and Your Child by Richard Appleton
This is a comprehensive guide to epilepsy specifically written for parents. It is ‘user friendly’, giving information and advice on all aspects of childhood epilepsy in a question and answer format. Designed to be able to ‘dip in’ and ‘dip out’ when required, it deals with the medical and social management of caring for a child with epilepsy. A useful glossary and list of epilepsy associations, organisations and publications are included at the end of the book.
Seizures and Epilepsy in Childhood by Professor John M. Freeman
This is a comprehensive guide covering the medical, social and psychological aspects of epilepsy. Although written primarily for parents of children with epilepsy, this book is appropriate reading for anyone caring for children with epilepsy, including doctors. The user friendly manner in which it is written, and the positive approach of this book, makes this a very good handbook, particularly for parents.
Growing Up with Epilepsy by Lynn Bennett Blackburn
This is a practical guide for parents written in a question and answer format. It gives an explanation of the function of various parts of the brain, and the effects of epilepsy on behaviour and social development. It gives practical advice and behavioural strategies to cope. It also offers recommended reading material.
Children with Seizures by Gregory L. Holmes
This book has been written with parents, teachers, and other professionals in mind. It is divided into two parts. The first part covers an overview of seizures, causes, investigations and treatments. Also included in Part 1 is a chapter specifically written for children to read (either alone or with a parent), and a chapter specifically for teenagers. Social and emotional issues are also covered. Part 2 concentrates on individual epilepsy syndromes. It ends with information on suggested further reading for families and doctors, and provides some useful internet sources.
The Brainstorms Family by Steven C. Schachter
This book documents firsthand, personal and detailed accounts from the child with epilepsy and their parent. Both parent and child document the hopes, fears, joys, disappointments and frustrations of coping with epilepsy. This book provides reassurance that neither the child, nor the parents are alone in going through these emotions when dealing with the impact of epilepsy on family life.
Epilepsy: A Practical Guide by Mike Johnson and Gill Parkinson
Written as a resource material for teachers, this practical guide will also be useful reading for parents and all professionals involved with children and young people with epilepsy. It covers the classification and management of seizures and the impact of epilepsy on the family and the child. Topics also include how epilepsy may affect a child’s progress in school and access to the curriculum. This comprehensive guide is written in a user friendly style.
The Ketogenic Diet by John M. Freeman and others
Having given the important message that ‘This diet should only be initiated under the supervision of a physician and a trained dietician or nurse’, this book gives an overview of the traditional ketogenic diet and tips on starting and ‘fine-tuning’ the diet. The book contains sample meal plans and a food list data base.
Keto Kid by Deborah Snyder
When her son Bryce was put on the ketogenic diet at the age of four, his mother Deborah Snyder was daunted at the prospect of successfully implementing the diet. This American, practical guide includes sections on her tips and strategies to help a child tolerate the diet successfully, ketogenic recipes and useful ways to make them more enjoyable
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